asplanet.info
| Asperger individual peoples thoughts - generlization... |
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| Written by AsPlanet.info - various UPDATED Jan.2010 | ||
| Aug 26, 2007 at 05:56 PM | ||
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ASD peoples thoughts, observations, differences as you see it. Children at times can find it quite scary being difference, it can trouble them. . . Some nights I look up at the stars as they shine so bright and it's like they speak to me, a reminder of the bigger universe that surrounds us all, I so love those still quite nights within my solitude I ponder, no one to enter or distract my thoughts, simply the world and me alone. So I wonder for that moment in time is it just me and the world alone.? - Alyson Bradley . . Hi everyone, hope you find some of this information helpful, these Emails have been sent to me via various people and groups. I feel it is important to hear other peoples point of view on aspergers and autism, rather than just mine. Its also great for non aspergers / autistic people to be able to help them understand... . . Life is too short to wake up with regrets. So love the people who treat you right. Forget about the one's who don't. Believe everything happens for a reason. If you get a second chance, grab it with both hands. If it changes your life, let it. Nobody said life would be easy, they just promised it wouldbe worth it. - Lynn Festa . . Some one said to me today (June 2009): "do not waste time nor energy on things that don't or won't matter...concentrate on the things you will be remembered by. Make your mark on the world! It's never too late." . My reply: "I so agree on this, I have been so busy trying to help everyone else and somehow for a while forgot about self and now realize its only by doing what each and every one of us do best that we can really make a real difference to the world..." . Response: "Always remember above all...you, yourself are the most important...without taking care of yourself you will be of no use to yourself nor anyone else.I remember this everyday, with a tube of chapstick...if it is the only thing I'd have done for myself that day, I still thought myself important enough to have used it. xx Take care of number one...you - the rest will follow. Self esteem, interests, friends and most importantly the friends and family who love you - for you." , My reply: " I agree and that means we all have to be who we were born as, not a stereo type image for someone else!" . . World wide awareness is needed, people are transit, autism just is! The universe is vast, autism unknown the world needs to listen and be intrigued by our unique differences as they can only learn... . . Autism Points everyone needs to know:1. Autism is not new. Any problem parents of autistic children have now others have dealt with them in the past. This means you can use what others have learned about autism to help you. You don't have to reinvent the wheel. This was a guest article written by Autism Diva. She runs the Autism Diva Blog.
I have AS, and I DO have feelings and emotions - Aug.07 Living with us must be very frustrating!! I wont deny that Fact!
As always I feel Tony Attwoods words below are spot on: : Tony's Perspective From my clinical experience I consider that children and adults with Aspergers Syndrome have a different, not defective, way of thinking. The person usually has a strong desire to seek knowledge, truth and perfection with a different set of priorities than would be expected with other people. There is also a different perception of situations and sensory experiences. The overriding priority may be to solve a problem rather than satisfy the social or emotional needs of others. The person values being creative rather than co-operative. The person with Aspergers syndrome may perceive errors that are not apparent to others, giving considerable attention to detail, rather than noticing the “big picture”. The person is usually renowned for being direct, speaking their mind and being honest and determined and having a strong sense of social justice. The person may actively seek and enjoy solitude, be a loyal friend and have a distinct sense of humour. However, the person with Aspergers Syndrome can have difficulty with the management and expression of emotions. Children and adults with Aspergers syndrome may have levels of anxiety, sadness or anger that indicate a secondary mood disorder. There may also be problems expressing the degree of love and affection expected by others. Fortunately, we now have successful psychological treatment programs to help manage and express emotions.
Copyright © 2007 Tony Attwood. All rights reserved. .
Social Misfits - Sept.07 From what alot of people are saying about being a social misfit, it is pretty bad to feel this way about fitting in and having great difficulty. I still have trouble fitting in socially with peers. As a matter of fact I just broke up with my best friend all because he misinterpreted something I had recently said. It can be hard to work and have social problems and be able to focus on the job. One thing everybody must keep in mind is the fact that you just have to be patient with yourselves and everything will be fine, because patience is the best virtue. I just wish Neuro - typicals would learn to be patient with Aspies, I know it's hard but they have to learn how to be patient with us. When we get something wrong it's hard knowing whether we're going to get screamed at or not especially alot of times when an Aspie is in school and their worried whether their teacher is going to get mad at them for not focusing it could be very hard. Even though Aspies may find it difficult to behave right and be social we just have to be heard better and taken seriously. .
Comment Got that right. .
Social Cues - Sept.07 .
Comment Be aware that you are not alone interpreting social cues. There are those who do not have Aspies that have difficutly in interpreting these cues. Sometimes its difficulty because of different cultures and the acceptance of others. I agree with you everyone should be more open and accepting of others and their differences but as you grow older you will continue to see that is not the case. I hopw that you and your friend will get the opportunity to talk about what was misunderstood and get back on the path of being friends. Friends are hard to come by. Take care. . Comment I have a hypothesis. It relates to face blindness. I have a photographic memory that's half useless. I can remember any sign, a page from a book, etc. But I can't READ a single word or even the page number. The MEANING of the thing doesn't get across to the other half of my brain. I can see the words, recognize that they are in roman letters and arabic numerals, even know that those numerals are the page number. Still can't read 'em.
Comment I'm pretty sure that there is a program out there that does what you describe or very close.
Comment No, I haven't seen "Snowcake." Hear it's good.
Comment I loved the Irish stand-up comic Dave Allen. His delivery was British deadpan but the stories were so clear and filled with detail I could always figure him out.
Comment About what you were saying, I know how hard it could be to interpret facial expressions. I also feel sorry for the fact that you have trouble recognizing words and numbers. I can't really help you there but you might possibly have dyslexia or something. I'm not trying to insult you or anything but just trying to help you out. You should also probably go to a Psychologist and get tested for anything new on an IQ test. I don't have dyslexia but I do have ADHD a fairly severe case where I sometimes tend to have trouble focusing on tasks at hand but I do pretty well. I think we probably should have some type of program for people like us to be able to really learn how to interpret facial expressions, it would be great for us to have that type of experience. If only the government had more experience understanding us we could have more access to social resources and such.
Comment I don't have any trouble recognizing words an numbers, EXCEPT when they replay in my photographic memory. In real time there's no problem at all. The funny thing is that this will happen even with a quotation I have memorized. I can recite it verbatim and remember its image, but even then I can't read the text.On IQ tests I tend to score within a couple of points centered at 142. I was actually kind of disappointed with that score, but then I realized that because of my condition I think outside the box (wherever it is and whatever it's made of), so I make much better use of it than most people with similar numbers. If the "face training" program doesn't exist, I'd love to be the one to lead development on it. .
Sometimes angry at the world - mainly because of the job situation – Sept. 07 In spite of the factor that I have Aspergers, sometimes I myself feel angry at the world mainly for two things. I don't have a job and because of my social problems in regard to Aspergers I feel I never had a relationship in my life. However I finally found out not long ago that there are no recipes or formulas or magic words or scripts in it but that I don't need to survive but right now I need a job even if its a part time job.
Comment Do you get frustrated over the fact that you are "good" at some things, and that you are kept from having good jobs merely because of social reasons? .
Comment The work world has been nothing but frustration. .. i've had over 50 jobs...Now at 52 i'm living with my mom, volunteering in the community and writing freelance... it is not enough to live on, but it is much more satisfying.. . i do wish i could get SSDI for the extra income, but i'm pretty strong emotionally and haven't had any of the other dxs (depression, general anxiety, etc.) that sometimes are a result of the frustrations of living with AS... and despite my work record, SS claims that i am not disabled enough and should be able to work...My community work has gotten me some friends, so that is a good thing.
Comment Exactly... How On Earth I can simultaneously be a social misfit AND a kind, reliable, dependable, etc. ad nauseum, "semi" human is beyond me! can i say "me too?" Yes i definitely understand. I'm 52. And, i've probably held 52 jobs, in most of which i've been told "we're sorry, you just don't fit in here"... Sigh. Deciding to get out of the job mill has been the best decision i've ever made... even though I don't have much money to show for it...but money isn't everything. .
Comment Perhaps i should not have brought the employment thing into the picture. All i know is that the person who wrote. Hit the nail on the head... it is so true, it resonates, I"M STILL thinking about that statement... .
Comment I disagree...if you have a skill that is needed, like in computers, which I do, sometimes doing projects on a temp basis is the best way to go, especially if you're not the office politics types (which by the way, most of us are not, a waste of time anyway), then then that is the way to go. Besides, in that industry, technology changes every 3-6 months, so it is best to keep moving, and still make decent money with having to beg for it. .
Comment That is probably true in the technology industry... I was not in the technology industry... and sadly, many of those jobs didn't start out as contract work... no, i didn't possess skills that everyone else wanted, just skills that pretty much everyone else already had... (i was first in the office / AA world, then in the library world, then in the journalism arena)
Employment Due to what you were saying about employment, it is hard for people like you and me to be accepted in the work world. I know because when it comes to accepting Aspies it can at times be difficult. We just need to figure out how Aspies could be helped and know that we can do anything we set our minds to. We Aspies are very smart people and other people just need to realize that. I read this book on meditation which tells about the mind and how it has four states which include, negative thought, wastful thought, reflective thought and positive thought. For people like me we are on wastful thought. I admit that I do waste energy and focus mostly on privaleges which isn't very good. I just need to focus more on important and focus also getting organized. We are great people when it comes to working we just need to let people know this.
Comment Yws, you're right, . And yes, - but it is not always easy, because people in the world have many stereotypes and notions and it is sometimes hard to break through these, and people may not accept us or see through
What about Work I have found that unless I am behind a computer creating a website or looking up something in a research aspect or data entry or something like that it is hard for me. I am looking for work at the moment but I am not sure what it is a really want to do.
Comment know exactly how you feel. Sometimes, I feel like I'm on pins and needles when I work because if I say anything or do anything, I might do something stupid that I will regret later. I am currently working as a computer support specialist and I have gone through several jobs lately in the past 3 years and I think it is also because I don't like to engage in gossip and chitchat that most people like to do which is a waste of time anyway, but I'm not antisocial at all. Far from it, I like to talk to people, but still have to be careful not to be too honest or it will be preceived as an insult to others.At any rate, that is how it is on the real world. I just started a new job recently and I do hope that this time, I will able to find the right job where they just accept me and my work ethic for what it is.
Comment t can be hard to decide what you want to do at any moment in your life but one thing you should keep in mind is the fact that everybody goes through life not knowing what they want to do. I myself am in that situation right now, I mean I am 24 years old and am a cashier at a local grocery store and like it pretty well. Being a cashier isn't exexactly the easiest job when it comes to dealing with people but at leleast it's an experience to have in your life. Are you good at
Comment Yes, i can definitely relate...It can be hard to figure out where we fit in... perhaps sitting behind a computer somewhere?
Social Factors I have learned - Sept. 07 yes I don't do well in the social department much either and I too have trouble with Social Cues as well as others in not understanding Body Language. Don't forget because I have Aspergers Autism right now I have never had a girlfriend relationship in my entire life yet others with Aspergers have had them. I know that because I have been going to Mr. XXX Asperger group in NYC since early 1995 and I still go to it and Mr. XXX helps me a lot in Emails.
Comment I'm 78, and never felt friends were for me, male or female. A woman I met in a partial-hospitaliza tion program (Which contrary to most, encouraged outside socializing; I started going to parties for the 1st time since Jr. High graduation, and actually performed in front of fellow patients twice at the hospital!) took a motherly interest in me, altho she was younger. She had me over for dinner weekly and an ALL holidays. When she got sicker, I did her shopping and finally paying, too, tho she saved the receipts and was going to pay me back when 'ship came in'. I resented this, especially buying her cigs when her pain made her resume smoking, but felt I couldn't stop. She did make two realistic attempts to recompense me, by taking out an insurance policy and opening a bank account in trust for me, but both came to little or nothing. That's a close a relationship as I ever had, but I've never tried to have any.
Yes Good Things in my life despite getting relationship problems – Sept. 07 Hi you are right about this, there are good things in everybody’s life including Autistic and Asperger People and including my life. Yes I haven't worked at a paying job in almost a decade (except for that workshop job at Fegs recently) and Job Path NYC is doing their best along with myself in trying to find a job plus a temp job.
Social Relationships Factor and the future confidence I got I know I may of said before and thought that because I have Aspergers that its impossible for me to get a relationship and that everyone one in the world hates or dislikes me but globally that is not totally true. Yes I have never had a relationship of a girlfriend in my entire life because of being scared but as others have said to me, there is someone out in the world that could be interested in me but I never know until I put the work time and effort into trying.
Things I do to Occupy Myself – Sept. 07 Hi , yes I have problems that bother me a lot and some of them are relevant to my Aspergers with my Social and Emotional and Anxiety Problems and some are not. Plus mostly what bothers me and I do my best to keep my mind off it is the frustration of getting a job because Vesid and its agencies hasn't found anything for me except that Fegs Workshop where I worked on putting circulars in bookstore bags of different colleges and the Follett Bags too. Plus yes my social and the understanding of relationship problems too and my emotions as well. .
Computer Games - Sept. 07 I wonder what sorts of games people here like to play? do they prefer computer games by self, on line games with others they cant be to see, or playing x box like games with peers in the real of life orboard like games and why you like of the choice you chose the most? . Comment Frankly, I'm old school with computer games, like Pacman, Pong, Space Invaders, Donkey Kong and such, but for entertainment, I just go out and just do it:--)))
Commet I love computer games too very much. Ever since I had my first Commodore Computer in 1985 while I was a CompuServe CBer I had played games like the MS Pacman just like at the arcades and also the Popeye Game too and other cartridges and then came IBM PCs or IBM Compatable with MS Dos then Windows 3.1 and Windows 95 now Windows XP since the World Wide Web on The Internet came up. Right now I enjoy the Hoyle Games and the You Don't Know Jack series the most along with Solitaire Games on the Computer or Card Games you play with make believe characters. However I have played Backgammon and Cribbage on Yahoo Games.
Comment I play FRG's Diablo, Neverwinter nights, and the ilk. I also like sims games like 1502 AD and some of the "warcraft" type games. I am a whiz at Bejeweled (my top score is in the 7 millions) and I waste a lot of time on Zuma when I want to chill out and not think about anything.
Comment This goes back to the mid eighties or early nineties back when IBM PC's had old DOS games even before those old Windows 3.1 games and there was this one game that I did like alot that a friend of mine with a computer too had. Back then I was using the Commodore 64 and he was using an old PC with DOS before even the Windows 3.1. That was a game called Ancient Art of War and in it I got to write my own story of how Crazy Ivan was trying to take over Jughead Park and I had lots of bridges put in and did many fights of those on bridges long before I would get the enemy flag. .
Comment However I have played Backgammon and Cribbage on Yahoo. I was taught cribbage during my freshman year at college by a guy who used the optional rule that allowed him to claim all the points I didn't notice for myself. He slaughtered me and put me off the game for 1/2 a century. I just started playing again, vs. a computer (automatic scoring) on a site called something like TVGames. Only 3 games per week are free there to non-paying members, so I'll only be able to play periodically.
Comment Playing computer games is my favorite activity! I like both types, but prefer playing vs. a human opponent. I prefer dealing with people via www or phone, rather than in-person. I'd have nobody to play an XBox game with. My favorite games are chess, Sabotage, Stack4, Scrabble, checkers. My favoite game on my old Atari was Eastern Front, an ahead of its time WW II strategy game. (Right now neither the Atari nor its TV monitor will come on; must be a power problem, but I can't find the source.).
The Diagnostic and Statistical Manual of Mental Disorders, fourth Edition (DSM-IV) defines selective mutism as:
Consistent failure to speak in specific social situations (in which there is an expectation for speaking, e.g., at school) despite speaking in other situations.
The disturbance interferes with educational or occupational achievement or with social communication.
The duration of the disturbance is at least 1 month (not limited to the first month of school).
The failure to speak is not due to a lack of knowledge of, or comfort with, the spoken language required in the social situation.
The disturbance is not better accounted for by a Communication Disorder (e.g., Stuttering) and does not occur exclusively during the course of a Pervasive Developmental Disorder, Schizophrenia, or other Psychotic Disorder.
Selective mutism was thought to affect less than one percent of all children until recent studies demonstrated that between one and two per cent of primary school childrem meet the above diagnostic criteria. Originally called elective mutism, the name was changed when the research of the 1990s determined that the condition is a response to a child's anxiety rather than willful election to be mute. Children with selective mutism are often shy and the anxiety involved in having to speak in certain situations creates panic so that a phobia associated with the given situation develops, with mutism becoming an avoidance behavior or defence mechanism.
The condition appears to be genetic with over seventy per cent of diagnosed children having immediate family members who either have or have had social phobia or other anxiety disorders. At the diagnosis level, it is still sometimes mistaken for, on the one hand, autism and, on the other, shyness-which-the-child-will-grow-out-of. If a child speaks normally when comfortable in his/her surroundings, it is not autism. If concerned parental observation dictates that a selectively silent child is experiencing more than ordinary shyness, get another opinion. As the parent, you know your child best.
In addition to the misdiagnoses of autism and shyness, the other great hurdle for the parent of the selectively mute child is the traditional assumption, on the part of some general practitioners and mental health professionals, that the problem is caused by trauma or abuse. There is absolutely no support for this - it is firmly believed, by those who are experienced in treating the condition, that selective mutism is an extreme form of social anxiety with genetic roots.
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"Children with selective mutism don't want to be the center of attention. They don't like to sit on Santa's lap. They don't like their photo taken on picture day. They don't want kids to sing to them at their birthday celebration. They just want to be left alone," So when you put the responsibility on them and ask them to draw attention to themselves by asking for help . . . that's really tough.
The above paragraph would describe me, and, I would guess, many of us on the autistic spectrum. So, where is the dividing line between selective autism, which they say is also social anxiety, and theautistic spectrum? Or, is it just a matter of who is doing the diagnosis? (31 August 2007)
I think this is because they are too honest and other children see them as tell tales, my child also becomes very upset when other children do not follow the rules, because they do not know any difference, to them it’s that simply, do it the right way as does not make sense to them to be wrong!.
Noise can be a real problem When I was a child, if stayed at someone else’s home found it so, so difficult to sleep if any unusual noise not use too. Have been known to put a clock that ticked too loudly for me into a cupboard and piled up as many cushions as possible on top, to try and stop the tick. It was like my whole focus was on that clock to the point I would be so distracted there would be no way I would be able to sleep, without stopping it.
The funny thing about that incident, I forgot to get the clock and cushions out of the cupboard. Never mentioned it again to anyone, I guess the parents just presumed I was hiding things as children do!
I have really good hearing, but if go out and lots of conversations going on just cannot hear at all. Same problem when on the phone, if anyone interrupts or other sounds cannot hear. It’ like I have to over compensate at times, and can get quite frustrated, when people interrupt me. Also if I’m thinking hard about something I may not hear you if you talk to me. It’s like I can over focus just on one thing at a time, and if too much is going on triggers stress. .
Taste and Smell Some foods my child just cannot take, use to think it was me. Everyone tells you children will eat anything if you do it right! So glad when I found out this is not always the case, and it really was not me.
There are quite a few things that my child just cannot eat, finds too yucky. It could be something that all the other children love, but to them it’s the worst taste ever and they just have to get it out of their mouths, even if it means spitting it anywhere, that or be sick – yes can be that bad. Can be the same for smell of food, just the smell can also make my child gag. Of course others think my child is just extremely fussy, but that’s ok, because I know different now.
Too Talkative A child with aspergers syndrome will often not make eye contact when speaking to you. They will either look at the ground or just look away from the person to whom they are speaking. Despite these socially awkward traits, many aspergers children will be quite talkative, usually about one topic that they may seem to be obsessed with. It can be something as simple as Pokémon cards or something obscure that they just saw on television.
AS children are usually social in nature, but often lack an understanding of social cues or the inability to understand body language. This can extend to the basic ability to start and end a conversation as well as the idea of waiting to speak until the person you are speaking to is finished. These children also often do not like any change in their routine and can become very upset, by something as simply as a desk move in classroom.
AS children seem to get upset quicker when teased. One child starts to annoy the other child (who happens to have aspergers) the asperger children seem to me to get upset, much quicker than the average child. They seem to get frustrated, upset much quickly and raise their voices, or withdraw and can end up so upset that they at times burst into tears. If ask why they are crying, never seem to know. I think it is a buildup of misunderstood frustration and emotion.
Obsessive compulsive tendencies Obsessive behavior I feel this can be a real problem for asperger syndrome individuals. But remember as a parent do not over control, or try to change to much as Obsessive tendencies can turn to gifted talent.
When growing up we do not always understand, that when someone says no, it means no. I can remember if I wanted something, it just had to happen or felt like the end of the world. I found the more rejected the more I seem to want things. A good example is when they phone a friend, and not in. Unlike the norm, seem to be able to just leave a message and forget about, can feel the need to continually try and contact, until have a response. It’s like have to finish that task to able to move on.
As a parent of an asperger child, you really need to set clear boundaries and discuss and explain any differences the child may have. Otherwise as a parent, you may be telling your child something, that just does not make sense to them. They may feel a lot of what you do is wrong. You really need to step out the box from time to time, get out of that safe zone and remember things, what may be right for you, may not be the best for them.
Aspergers does not help much with relationships Relationships they really can be a bewildering process anyway. Aspies usually find even harder because it is a lot harder for them to show real emotion, when growing up I had real problems at times knowing how to respond. I could be in a relationship one moment content and happy and the next just felt distance and cold. There are times I just need to be on my own, and can get quite frustrated when others want to be around me. At times I may seem to push people away one moment and then wonder what their problem is the next, can be quite confusing for partners, has taken years for my husband to work me out!
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| Last Updated ( Jan 29, 2010 at 09:11 AM ) | ||
