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You cannot discipline away a difference, as each one of us a unique individual.! PDF Print E-mail
Written by AsPlanet.info - Alyson Bradley, plus various - UPDATED June 2010   
Oct 06, 2008 at 10:06 PM
Child / Adolescence / Young Adult

Children are not things to be molded,

but people to be unfolded" Charles F. Boyd

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12 year old with AS interviews his mother

  http://storycorps.org/animation/


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Every child starts out with a whole world of possibilities before them, some are embraced, for others a total nightmare better forgotten... as we start to live life some are crushed and lost along the way, is it the child's thought when they grow and know no other way. Yes we all need to teach our children right from wrong give them the strength to do what is right and for those who are lost reach out and help... because if we pass by the weak, mean and angry individuals, we then without trying include them into part of society. ?

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My husband only believed my late hours at night was not because of him, but me when I could explain reason for why, but he still forgets or simply feels sorry for himself at times, however much I tell him it’s not him but me, others truly have to get to realize it’s not what children do or not, it’s the way some of us are wired, my son like myself never needs as much sleep and I have accepted that, as long as homework done and he does well at school etc.. My point is do not punish others for the wrong reasons, for our lack of insight, understanding… you may have your own expectations, but we are individuals also!.

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At School AS children can vary greatly, depending on co-

morbid conditions and other factors. The children can be over

sensitive, take comments to literally, seem withdrawn, extreme,

loners, no eye contact, may mumble, may seem needy, annoying to

some, continually move around and fidget, stim, ask endless questions!

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Each and every one of us has a right to be that unique individual we were born to be and when children not allowed, they know no different, all to easily for them to be lost in an ocean of nothingness, until they find the courage to swim themselves...
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Children are all different, learn differently, having to conform only leads to frustration and often all too easy to become anxious, especially if they feel on the outside, on the edge of life looking in through everyone else's windows. And far too often can only dream that one day they will be and simply fit like everyone else, as when no one explains how can they know that they are not all wrong, but simply different. Peer pressure and a need to feel and be like others, if continue to feel shut out often withdraw and step back into their own safer reality, where no one causes harm, the shutters come down and the damage starts!

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Autistic children experience the world differently than most children who are not on the autism spectrum. They have trouble expressing themselves and tend to shy away from contact with others. They can have trouble connecting body language and facial expressions to emotions of other people. They can have trouble understanding words and phrases. They can get frustrated when they try to express themselves. Basically, they have problems with verbal and non-verbal communication, social interactions, and leisure or play activities. It is a personal thing-every person with Autism is different. These are generalities. There are different levels of autism. Some people are high-functioning and some have more hurdles to face.
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I was born different, as a child it was hard everyone telling me no, no, no without understanding me.. as a child I get bored so easily, i didn't play up for attention, I just need things to do, others to understand and allow. Still as an adult now I am like an over active computer at times and do not switch off easily, so before you judge or tell me off - PLEASE try and understand my differences, as any misunderstood difference is damaging and will only caused me more frustration and you more pain...

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Out of control / Hugging does it work!  My thoughts on this is

 sometimes it works and sometimes not, its getting to know our own children.

It really helped sometimes for me and my son and at other times I just had

to give my child space, and myself... but that was also partly when he was

feeding off of my own stress! ASD children I feel pick up more, sense

situations more and can be affected just by other things that are going on

around them, taking them out of their comfort zones and overloading them

sensory wise, these are the times my child needed just a quite space alone.

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Their family, their choice: The word Aspergers, Autism spectrum disorder is huge to start for many parents and often easier for them to discover in their own time, in their own way as to be told many just become defensive and /or feel it’s there thought. If a real problem it may be worth approaching the person involved, but very gentle steps advised, just as being concerned not just for their child but for both of them, maybe over a meal. It’s so important how the situation is approached and needs to be in a concerned support role, suggesting a child has a spectrum disorder to anyone unless imitate family is wrong, as if the person does not understand they may just dismiss and back away from you. Discussing actions of another child and wanting to help and make positive suggestions will be a lot more effective, if everything does not work, if other person wants to listen then maybe mention ASD just as a suggestion, we have to remember not everyone wants to label their children and it has to be their choice.

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Meltdowns, anger is are often cause by frustration, being misunderstood, I have experience of my child having when younger huge meltdowns, what I found worked is ignoring and when calm enough talking to them, however young, they need to know your listening.......if child gets out of control of course safety first, but then try and give as little attention too as possible, it does work. AS children often have heighten senses and so your mood may well affect them (sensory overload), if things are getting out of control try and put them in a safe place and remove yourself from situation, as quite often you may well be the one making it worse.

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Meltdowns, shutdown out of control, frustration, anger or just not being understood, the good news is these children often are very intelligent and I found by getting down on their level (seeing through their eyes) helped me to understand and communicating, as firstly AS children hate any change, being out of routine and being told what to do, hate feeling they are being controlled as like to feel have some sort of control themselves. They  feel safer that way, so include as much as possible my son understood at a very younger age, more than I even realized then, so remember always talk to them, not at them. But also like any children clear boundaries are vital, especially with AS children as they hate not knowing, always over prepare and routines always help...

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In theory if you believe enough in the intelligent spectrum life itself at times trying to impose and change the very fabric of who we are as individuals I fell piontlesss. What I am trying to say, maybe your child’s frustrations may simply be a disconnect, and it may be hard for you to understand how intense at times ...

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When I had young children I use to overload sensory wise and now and then would go to my basement to offload and simply scream, it was like all my built up excess intake was released brilliant.... at the time I had no idea why and that was scary, but simply had to, like an intense build up that needed to be released, now I so get it... and sensory wise even my husband’s breathing at night can set me off, but now I know no one’s thought, so much easier to deal with and have excepted as a part of who I am, I am ok with it and those that care for me accept mostly. What I am trying to say, maybe your child’s frustrations may simply be a disconnect, you not understanding how intense at times sensory overload can be!

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Emotional Chaos, sensory issues overloaded, shutdown

“it’s important to understand your child’s emotions – see as they do”

http://asplanet.info/index.php?option=com_content&task=view&id=66&Itemid=110

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The misundrestood Child:One of the many threads on AsPlanet Forum:

 http://asplanet.info/forum/index.php?topic=626.0 Quote "This is all so true.  Many people think they know about AS then when you talk to them they actually don't!  I have had (like most parents) many ups and downs with our now 12 yr old beautiful, fiery daughter.  The light at the end of the tunnel is when she shines; she shines bright and I have a good feeling about 2009.  Most of our barriers have been created by society who misunderstand her AS and how it creates who she is and how they can help her to achieve her goals instead of hindering.  It's a long hard path we tread, but as a family we do it together and we venture to places others daren't go.  Love keeps us strong." from one of many comments AsPlanet forum member - Join us, come chat, read, lots of on going discussions, many of us are on the spectrum so we do understand: Parents and Friends of aspies http://asplanet.info/forum/index.php?board=6.0

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Friends: As a parent, you need to know that your child may well not be surrounded by friends. Don't worry too much about this, aspies don't usually need lots of friends like most NT children seem to. That's not to say that aspies do not get lonely, they often want friends some of the time or on their terms. But overall usually prefer less or just a few friends. So if your arranging a sleepover, it is wise to keep the numbers down to only a few friends and preferably one-on-one play. Team sports are not good for aspie friend-making but things where the child can operate semi-independently and with out competition, like karate, scouts as children get older often if sporty quite like sports such as dancing, running, rowing etc... can do in their own time, in their way. I have done team sports, but always felt like the outsider....

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Shyness may not be a sign of aspie, but feel it can partly be, especially for teenagers... I shouldn't have been shy of boys as had a twin brother and a brother a year and a half older I use to hang out with all the time, a real tom boy, which can also be a sign as we do not fit into  social "norm" girl circles.... The whole boy girl thing, if a boy looked at me I would turn bright red this is because I had no idea how to respond, well not in a natural way like others and if I dare to look into a boys eyes, anyone it had to be love, my naivety kicking in here  some of the situations I got myself into growing up, amusing now, but terrifying at the time.
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I am not so sure teaching us how to act makes a lot of difference to who we are , it helps just like any life experience, to me with my children encouraging friends self belief made the biggest difference... I just could not relate like other children and that should of been ok, as would not of felt comfortable being like the others..., in fact as a teenager being told how to interact I feel would of made me withdraw even more....we are not robots, I truly feel good peers and self belief in ourselves and allowing us our differences so much more important. I only gained confidence with acceptance, allowing and understanding of self.

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Some think that I use to do as a child and still sometimes do, is hover around people. It’s that wanting to be a part of, but not knowing how. Attempting to converse but not sure I really want too. At times like this I may just say odd sentences, even repeating things I feel worth saying…, I sometimes do this with my boys now, will  visit them in their rooms, or where ever they are for no reason, it’s just a need to be around them, a familiarity. So if your child is just hovering for no reason to you, there may be a reason to them.

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Sport / Exercise -I can remember only too well how cruel other children can be, things may of changed to a point, but children still want to be the best, not the afterthought. Unfortunately I feel this will not change until the media stops stereo typing what we all should be like!

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As a child I turned up once at a running tracked, I loved running gave me a sense of freedom. Anyway, I took one look at all the child in their new gear / trainers (I use to run bare foot) and how confidence they were, turned walked away and never when back. Maybe I would have done with lots of support and encouragement, as with asd children I now know a little extra time, support and encouragement can make a mountain of difference. ASD children often like to do things, try out in their own way, in their own time.

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I do agree keeping fit and healthy is important and feel saved me at times, in fact sport turned to an obsession with me for a while - better than reality growing up at times. This can happen with asd children, we can over obsess in whatever we do and for the sporty type I am sure many athletes in the mist.
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Sport as a child just another excuse for others to laugh and bully me, but I did find later on in life running, walking, dancing anything I could do on my own, also kayaking being in the middle of a lake alone, heaven to me ... I have also heard rowing great and martial arts for the less timid types...
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But I do also feel it does come down to the child, as those of us on the autism spectrum can be very different i.e. my older son and I but extremely awkward as children, team sports the ones always picked last, I was very sporty as a child, he is not.  The worst thing any parent for these children can do is insist they play team sports, it can be a nightmare for the children. Have things changed from when I was younger, would like to think so, I have been to my sons sports days and all the children wait to watch him jump to laugh, and he has friends.
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Maybe it's ok for nice family in good situations, but for the majority it's not. Yes encourage sport, but do not push into and do not be surprised if they prefer some think they can do alone, I did and that's when I was happiest, not trying to fit into a team I never would. Yes sport can be great for confidence, but can also make us want to run and climb back into our shells and stay.
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Encourage and listen to the child, work with them and try not to make them do because you want them to, like sign them up for a year, take it week by week. Exercise can be fun at home, I use to dance with my boys when younger at home, play games in the garden, at times they have joined in groups but often short lived, but have always worked with them giving choice, but both happy fit and healthy if not always in the conventional way.

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When time allows I try to help out at my local school with sport and other activities, some teachers have commented they have notice how some of the asd, neurological minded / differently able children etc.. relate to me and join in more. I feel maybe it’s because I understand them being on the autism spectrum myself. It does take a little extra care, time and attention, but always worth the smiles. Unfortunately unless more communities get behind schools, I feel these children often miss out, as without much needed funding the time and effort needed is not always available.

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Your support and understanding is the key to unlocking a child’s potential - Don't be the one holding them back!

When younger I wanted to learn so much and was easily swayed by often the wrong people and having no sense of real danger, it got me into lots of trouble. Do not get me wrong as also could be very stubborn, but I guess did not have any great set of friends / peers, and I often would take the more exciting path, well to me anyway and what the other children seem to enjoy, just bored me.

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I grew up and had to learn the hard way; it took far to long and involved so much unnecessary hurt and pain..... Do feel early teens to late twenties is a really difficult time for most people on the spectrum and still feel nowhere near enough is done for them. There are lots of parents / child and adult groups. But the age when people on the spectrum can be most affected, they seem to be left out of the groups - in between somewhere.

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And this is often the time when these youngest discover for themselves they are on the spectrum.. and without a full diagnosis it can be so hard, as they can have other associated conditions such as Dyslexia, Dyspraxia like myself, ADHD, ADD...Depression, a Anxiety Disorders or a number of other things. it can be very frustrating for these children who are often highly intelligent.

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They can have over active minds that seem to race, it can be near impossible to focus, listen, and learn. If they are disruptive it could be to hide some of their frustrations. It can be confusing just trying to put thoughts onto paper if unable to focus and thoughts muddle. On top of this the children are often awkward and can be quite clumsy, so can already feel like the outsider and lack confidence.

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So If has not already seen Occupational Therapist this I would advise as dyspraxia is very common. I was assessed here in NZ and for a good overall assessment I would suggest contacting someone like SPELD New Zealand http://www.speld.org.nz/ for an overall assessment, but unfortunately does cost..

But for me learning about my own strengths and weaknesses even later in life really helped.

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Myself as a child who never received an education, confused and lost in a education system that was never design for a diversely different complex individual as myself, as Donna Williams would say a "fruit salad mix" as I like to think at times maybe be I am as mysteries to others as the universe, but that should not alienate me. I never ask to be born the way I am, I never ask for a school system to not include me, but being ignored by the school system, given up on followers you around for life, to be honest until I found Aspergers and discovered many of my other neurological differences I always partly lived in the shadows of life.. part of my life a shameful misunderstood difference that even scared me and killed my confidence. Real understanding helps unlocked lost individuals, I should know!

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Understanding varied Autism needs

 University Students With Autism / AS

http://www.users.dircon.co.uk/~cns/index.html

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ASD Teenagers quite often feeling like the outsider and may want to cut themselves off from the world. There are far too many who spend all their time in their bedrooms even taking their dinner up there to eat to avoid parents, family members, siblings and any social contact in general. At the very most some of them have access to the internet and chat on line. If your child’s is like this you or them are not alone, there is support understanding and help out there, but still far to little.

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Emotion for autistic children is one of the things so misunderstood. The thing is we do know, but often are brought up to expect that we are loved if showered with affection, the media, tv etc.. helps us to over expect how it should be.

People on the autism spectrum quite often do rather than show, what you do have to realize we grow up in a world and are often not allowed from birth to show affection in a way that is natural to us, remember the child who clings on so hard, what do we do push them off, and tell them no.
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I feel often our emotions are suppressed, from very young and this is what causes our frustration and anger, at being rejected so often. I do love and feel and have always found it extremely hard to show these feelings, in the way others expect and do not feel this will change until people not on the autism spectrum start to see thought our eyes and really get to understand what it is like being autistic.
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My son who is also on the autism spectrum may tell me to go away, not let me hug him, but I know he loves me and I never give up on him, we share an understanding, a bond I guess. We may have different needs from you, but we still love and feel, so please do not judge before you truly understanding.
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Maybe it’s just real communication on both parts that is needed. Children often get label as bad when cannot sit still, but quite often it’s because they are bored very easily and often quite obsessive on certain topics and may not want to do anything else. So the key is really to make what they do as enjoyable as possible, with lots of encouragement, have found a little extra encouragement with these children can make a real difference. Find some think that interest them to keep their attention, which should help them focus.

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Regarding the schools you really will have to work with what resources are available (never enough), so talk with them, hopefully should be a special needs unit at school will be able to help, but resources limited especially for the more intelligent children. If child can have a one on one teacher or private tuition they can only benefit from this, highly recommend, but would probably have to pay for. Preferably someone who understands Aspergers, very hard to find unfortunately. Large classes are the worse for these children, often over sensitive to noise and easily distracted.

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The best thing you can do for your child is to read as much as you can about asperger, which will enable them to understand them more. Parents unintentionally often try to change their children to what they believe they should be like, instead of really trying to understand their differences. Which often leads to parents feeling like bad parents, when they are not.

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.I cannot state enough how understanding their differences, a good set of friend(s) and a little extra encouragement can make so make difference.

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Asperger's Here's how to build your hopes

http://www.timesonline.co.uk/tol/life_and_tyle/article4876937.ece?Submitted=true 

Syndrome and the Voyage Through High School: Not the Final Frontier

http://www.redorbit.com/news/education/1266639/aspergers

_syndrome_and_the_voyage_through_high_school_not_the/

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I have realised the need for more support, for people with Aspergers, especially young adults, and have already spoken to various groups to consider having more information on Aspergers. As there seems to be a lack of really good info out there (especially for young adults) everyone seems geared to helping children, or setting up adult groups - I feel a little concerned for this in between age, as at that age Aspergers without being explained correctly, can seem huge, and it would be so easy for them to slip through the system.

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If you’re needing answers please ask me anytime and if I cannot answer you, I will do my best to find someone who can. As I know only too well young adults can see the world very differently to the average person. That can mean different priorities or different sensory experiences which can be exciting, but can also be exhausting, isolating and confusing.

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Children with Aspergers face increased changes through puberty. The behavior issues of impulsivity can increase in both frequency and intensity. Children, who have experienced bulling and at school, may become increasingly aggressive, mixed up and confused.

 

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                                                           As a ASD Child did you get bullied ? 
             yes
84%
 84%  [ 84 ]
             yes and i bullied others
12%
 12%  [ 12 ]
             No
4%
 4%  [ 4 ]
             No and i bullied others
0%
 0%  [ 0 ]
Total Votes : 100

 

My school years were never easy, I was bullied incessantly.  I am not sure if it was because of this or I didn’t want to or couldn’t conform and fit in like everyone else.  Even though I was a good child if there was some think I did not like I would say and that included the teachers, which never went down well consequent I became very withdrawn, would walk around with my head down eyes fixed firmly to the floor….. The more others alienated me the more I focused on my own world, intense interest/obsessions with certain things. I hated and guess still do, anybody including family going through my things… its like an invasion of my world, maybe that’s why my sense of privacy was and still is of the utmost importance to me.

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Disabled student takes state to court | theage.com.au

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A misunderstood difference - various comments, studies show:

"Children in 'learning difficulty - More than one in six school children has some form of learning difficulty,

a survey suggested. Specialist learning support teachers across the country were surveyed for the charity Mindroom, which helps children and adults with learning difficulties. It claimed the results showed that more

than 120,000 youngsters -17.2% of schoolchildren - were affected by a recognised learning difficulty, such

as dyslexia, attention deficit hyperactivity disorder, asperger syndrome or tourette syndrome."

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"Families of children with autism face unprecedented financial strain compared to those with other special needs, according to a new federal survey of nearly 40,000 children with special health needs. Parents

dealing with autism pay more for health care, are three times as likely to cut back on work hours to care

for children and are more likely to face other financial and marital problems, researchers found. "

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"The siblings of children with autism-spectrum disorders, such as one child who may be

profoundly affected by the disorder. "I'd kill for him. But I could kill him, too," said his sister,

whose younger brother has Asperger's syndrome. "Because socially he needs help, so I

have to protect him and be there for him more than a normal big sister would."

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"I can so relate to this para. as I had to look after my twin brother this way and

I was on the autism spectrum myself, it was bad for me, but a lot worst for him

growing up, a living hell in parts. Of course neither of us knew back then, he now

chooses not to know, and his only son has been diagnosed with Aspergers!"

- for more on this see my profile and will be in my first book -

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 Who was this Boy? Albert Einstein
http://groups.msn.com/autismsite/autismc...

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Sue Larkey - Strategies essential to making the

 year a success for you and ALL your students

http://asplanet.info/index.php?option=com_

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"You cannot discipline away a difference"
I am often around children who I see as autistic but the parents and at times the children are not ready for the label, no easy tasks for any professional and guess the label will not change the child, but understanding makes a huge difference, especially to the child and often the relationship they have with the parents, teachers, school etc...sadly I see time and time again partners working along with the school wanting to change, get their children to conform without really understanding them, this just leads to boredom, frustration and anger long term and often a lot of unnecessary pain on the child's part, I wish more parents would get down on the child's level and truly see through their eyes....
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Even if the child is diagnosed often lack of real support, often schools even when they say they understand, still many seem to go out of their way to get the children to fit and conform rather than embracing these individuals...

I just didn't have a clue whatsoever growing up! I just wondered why other people my age just 'clicked' and the fact it didn't with me made me want to give up, except I did not give up, I just became more desperate and reached out to all the wrong people.

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I had to learn to adapt and change had no idea why I never fitted in and guess we do with age, but that has not changed the real me, understanding and awareness and having other likeminded people to talk to has helped me the most and having the confidence to find myself again. At times feel I should have been an actor as have learned to fit in and play the part almost too well, but it is often an act and takes an effort. And with each conversation within the ASD world with other aspies (people with Aspergers), as I am able to understand everything they do, think, say I feel normal... but only I guess really in asperger terms!

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Some of the suggested top therapies that have heard can help some children: Treatments that can help if children: Applied Verbal Behavior/ Floor time, Speech therapy, Occupational Therapy, Social Skills Groups,  Inclusion school (not pulled out but mixed in with typically developing peers so he could learn alongside them), also some children need special diets not all, but diet wise as with any child a good balance diet and exercise always helps.... Speech therapy, something I feel vital if a need and children should not have to wait, as windows of opportunities can be lost..

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My child never had treatment, but do feel a lot of the things we do anyway naturally as parents, ie. Like applied behavior we teach our children from babies, how to be and act in the world and that should not always be on our terms, what works for us? But what works for each individual child, with clear boundaries of do’s and don’ts. Implementing can take more time with some, but feel it’s important to stick to some basic rules within every home, as everyone’s happier then. Some children it takes more effort but worth it for peace of mind, I have always found including my children in decisions instead of instructing has really helped, as quite often especially asperger children can be way beyond their years. Be flexible and adaptability is key and not to worry ahead, just to deal with each situation as need arises.

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As a mother to a aspie child, if you are not on the autism spectrum the key really is to understand, read, research and read some more.... wanting to know and understand is so important, but one thing to remember all children on the autism spectrum, just like those that are not are different, as all children are unique individuals, as with any child as they learn and grow to me a difference has never been a problem, and I always just deal with each issue as and when... aspie children have their unique differences and to understand and accept, allow really will make a difference...
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Was thinking back to when my boys were younger, the hardest thing for me was having to continually find them things to do, otherwise became bored and not always easy when they don't want to do what the other children do, we were always the family doing different things or things in our own way, I guess what I have learned try not to make them do things because others do, and if they do, try not to expect them to always act or be the same as everyone else, once I stop worrying about what everyone else seem to think and say and just got on with things, my life a lot easier....
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Celebrating Those With
Autism Spectrum Differences
Who Lived With Odds Against Them

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So many press those with ASD toward normalcy. When all that is observed are the deficits and traits that tempt social ridicule, it's difficult to imagine any solace in future optimism. Milestones of early developmental behaviors are often the indicators of future success. A parent becomes convinced of Autism's permanence after observing many years of early development where very little changes. Even when things do change, each small step seems to be accompanied by a series of regressions where one often surrenders all hope.
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One of many stories, Pauline and Hermann had a Son who was slow to learn and talk. His teachers said that "nothing would ever become of him." His older Uncle (the odd one that the family didn't like to visit) viewed the boy as "one of his own kind" and helped to tutor him, even when the Parents thought it was futile. This Son would clash with the school system; his grades would drop and he would eventually be expelled. If it were not for the intervention of one with "like thinking," world history would be entirely differen t.
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 Children with Asperger's: 21st Century Brain Trust
http://www.businessweek.com/bwdaily/dnflash/content/nov2008/db2008113_305056.htm
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Quote: "Kids with Aspergers (already) have difficulty making sense of the world

around them, so if you throw in puberty ... it's even a more difficult time," Gatrost.

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Adolescence can become a very difficult time for these young adults, as

peers may no longer be willing to tolerate someone who seems different. Moodiness, depression and anxiety can also develop in adolescence due to hormonal in balances, and the increased separation of the young adult and their peers.
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This is a time of their life when social demands become more complex and it becomes increasingly important to be able to understand social cues. Young adults can be more vulnerable to manipulation by others and peer pressure.

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They are likely to experience more rejection among their peers, which can lead to them feeling very isolated and confused. Society generally embraces different people if in the spotlight, and the ones that do make it usually have great support and belief in themselves. The real problem with society in general is people avoid what they do not understand, and always to ready to criticize - often leading people on the autism spectrum feeling inadequate and lacking in confidence.

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Young adults can already feel quite excluded and not having anyone to share their deepest, darkest secrets with, or feeling not able to because of the lack of understand or reaction if mention on the autism spectrum, end up not having the same closeness through friendships as others. This can lead to feelings of closeness becoming muddled with rumblings of desire. Not knowing how to interpret all of this, there thoughts of closeness and warmth can merge and both become sexual in nature.

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These young adults need to learn that there is more to relationships than sex. Thinking back to myself I would often latch onto people for all the wrong reasons. Quite often going for non stereo types of relationships, maybe this was because never felt fitted into the "norm”, and easy influenced by others. Often lacking the confidence to understand their own emotional differences and mechanics of intimacy.

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The Romantic Lives of Young Adults with Asperger's Syndrome

If I was in a wheelchair would you still discriminate against me

http://asplanet.info/index.php?option=com_content&task=view&id=79&Itemid=125

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I know most young adults you could say learn from their mistakes when growing up, but quite often the emotional side being a little confused. We can be a little naive in this area and I myself became desperate to find a partner, thinking it would fill the void, the difference in me that I felt was lacking. Often going for inappropriate partners, being attracted to the wrong sort of people, older people, as thinking their wisdom may help fill in the gaps, this usually leads to insecurities in who we really are, more confusion - as long term we really need to look within and understand ourselves, before committing to anyone else.
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As parents we can only guide young adults, and help them to become confidence to stand alone, they may enter relationships before they are ready, but unfortunately if they do may mean they get to learn the hard way. So my advice would be just be there for term, not to judge if you feel they are wrong, just try and support and understand. As the last thing they will need is to feel put down for any mistakes they make. The best way to help these young adults is to give continual confidence boost, as believing in them and helping them to believe in themselves, long term will make so much difference.


Of course none of this is at all easy, everyone has problems in relationships and making friends etc.. but it can be so much harder for the child on the autism spectrum, so we need to remember and take this into account. What makes it harder is that no two adults/children on the autism spectrum are the same, so there are no easy answers. All we can do is help equip our children with an understanding and to ensure they do not get lost soemwhere in the whole process, or compromise themselves or their values. Discuss, discuss from an early age, good communication really makes a different.

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As I grew up with Aspergers, I know only too well the important as a young adult, how vital it is for real support. Because without good support, guidance and help. These youngest can end up taking substances to find answers, unfortunately asperger people whatever they do, can become quite excessive. So if they decide to drink water or alcohol, when out. Only too often this can be too excess. Because of compulsive tendencies, and the added pressure of feeling awkward in social situations.

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If you, your child, partner, friend become angry, which can be the start of depression. Try and figure out exactly what's setting them off, then help them, try and change the situation and/or the environment, also develop some techniques for handling anxiety when it does turn up. Sometimes changes as simple as changing the lights, lowering sound levels, reorganizing the schedule, or counting to ten can make all the difference. Just having someone to listen and understand can completely change a situation around.

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Depression and anger are 2 very real issues quite common in Asperger syndrome, part of the problem comes from having conflict between longing for social contact and an inability to be social in ways that attract friendships and relationships. Even young children seem to know that they are not the same as other kids and this gets emphasized in the social era of adolescence. Many cases of depression, in fact, begin in adolescence. Anger, too, comes from feeling out of place and being angry at one's circumstances in life. For more information on depression see the following links: http://www.urge.co.nz/, http://www.outoftheblue.org.nz/, http://www.mentalhealth.org.nz/.

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Depression quite often develops in the pre-adolescent or adolescent period in children who have high-functioning autism or Asperger’s Syndrome. This may either be a reflection of comorbidity with manic-depressive illness or be seen as a reactive condition following in the footsteps of feeling socially awkward and of being an “outsider”. Many adults with Asperger’s Syndrome or high-functioning autism apply for psychiatric help but are only occasionally correctly diagnosed as having an autism spectrum disorder. We have seen our previous patients diagnosed with borderline personality disorder, antisocial personality disorder, paranoid disorder, psychosis, and schizophrenia. It may be a matter of the adult psychiatrist not being familiar with the history and symptoms of an individual with Asperger’s Syndrome/high functioning which makes him/her liable to make a diagnosis of a condition with some overlapping symptomatology for which there is a well-known framework.

[Asperger’s Syndrome and High Functioning Autism: Shared Deficits or Different Disorders?
Gillberg, C, M.D., Ph.D., The Journal of Developmental and Learning Disorders;5:79-94. - to view more:
http://asplanet.info/index.php?option=com_content&task=view&id=69&Itemid=113]

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A number of people with autistic spectrum disorder are involved in the criminal justice system as victims, witnesses or offenders. I have heard there is no evidence of an association between ASD and criminal offending. In fact, due to the rigid way many people with ASD keep to rules and regulations, they are usually more law abiding than the general population.

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But I do feel that ASD people are more at risk as victims of crime rather than as offenders. Often being quite naïve and unfortunately easily lead, if get involved with wrong peer groups when younger. And if in situations that get out of hand, because can be too honest, this can be misinterpreted to easily. Also quite often people on the spectrum have other associated conditions, learning difficulties and mental illness, which can cause so much confusion and misunderstand from all sides.

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 Starting Points (Children and young adults with AS)

One of many book reviews, lots more information on forum:

  http://asplanet.info/forum/index.php?topic=683.0

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Vulnerability (some of the problems young adults may face)

This is just a generalisation as asperger people are all individual and are affected in different ways, but some of these points can be only too real, when left isolated and misunderstood. People with Aspergers are very vulnerable. Adolescence brings about the struggle to cope with the confusion, stress and isolation of their almost "alien" world. Suicide can become a real concern, being an adolescence can be hard enough and already many of these young adults have communication problems. So it is vital if having to come to terms with being autistic, they feel understood.

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Some other typical problems that may be faced by those with Aspergers include. Are more prone to bullying, teasing and exploitation, because their behavior is seen as eccentric, peculiar and non-conformist. Trouble with seeing the "bigger picture" due to their focus on specific detail. This can be a problem because they cannot see the consequences of their actions or put things in context. Extreme stress and confusion if a routine changes e.g. bus coming at a different time, shop out of their favorite brand. A problem with planning, because it requires the ability to think hypothetically, and predict consequences and trouble putting their thoughts into words and cannot articulate their frustrations, fears or how their condition affects them.

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Do ASD children really need a cure, or maybe just acceptance,

understanding and support to help develop our young

individuals into confident young adults as they so deserve...

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Nothing Wrong with our Child!

One of the biggest problems as I see it is people not wanting to know and feel this is partly due to other peoples prejudice. For some reason lots of people seem to not want to know, because of stigma “not the norm” which of course is due to quite simply lack of knowledge and understanding.

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Aspergers is just a different way of thinking and seeing things, really. By not wanting to acknowledge this, you could hold back your child’s education. If your child is on the Autism spectrum please embrace their differences, its apart of who they are.

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Quite often the parent(s) are the first to notice, that their child is a little different from other children. So many times I see or have heard the parents wanting to do something, but the grand parents, friends and even the schools saying “nothing wrong with your child. They just need to be told “a bit of discipline will sort them out!” The joke is they are right, there really is nothing wrong with their child.

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I have even heard a storey where a farther refused to listen to his wife, to the extent he decided there was something wrong with her, and ended the relationship. The sad thing is there really was nothing wrong with the child, they were just different and had different needs. Why do some people feel if their child is anyway but in their mind the excepted norm! it’s a reflection on them, they really do need to look at themselves.

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By not acknowledging their differences, you could be letting your child suffer unnecessarily and holding them back, not just educational wise. Because if a child is continually being told they are wrong, put down or simply just being misunderstood, the child will start to believe it’s them that are wrong, themselves. Which can lead to all sorts of behavioral problems? This is just my view and a generalisation, and I do realize there are lots of great supportive people, grandparents out there.

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By embracing your child’s difference, instead of trying to change and make them conform, it will make for a happier situation all round. As often these children are already feeling confused and misunderstood to start with, and can become very frustrated and angry. Time and time again, others want to blame the parents when a child becomes disruptive, instead of really dealing with the real issue; it just takes a little support and understanding to make such a huge different.

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We Are Not Like the Other Kids

http://firefox.org/news/articles/1432/1/We-Are-Not-Like-the-Other-Kids/Page1.html

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Fussy Eaters

Most of us do not like some food and can go through a fussy eating stage. But it’s not the same for everyone, children with Aspergers and Autism can often have extreme food selectivity, because of sensory problems in regard to touch, smell, hearing, taste and sight. Often this problem is well beyond the scope of what parents would call fussy eating.

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The child may only eat a very limited range of foods and/or eat very small quantities of food. These children can be quite selectivity wanting to eat from the same plate or eat food of the same/certain colors. There are positive strategies that can often help with extreme food selectivity, being aware of sensory issues such as textures, smell, color, cold and heat will help. If you do have a problem with your child, it’s not necessary you, please do not feel bad by seeking professional help, your general practitioner can help.

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I know only too well with so much pressure on parents and children to eat the right foods. Before criticizing anyone else, take a step back as there really are valid reasons why some children are unable to follow the norm. I get so fed up with other people thinking they always know better, please do not judge without really knowing, there are many reasons autism being just one of them.

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I went away a while ago, and as one of my children is quite selective, the couple we went and stayed with took it on themselves to continually put me down as a parent and really was not interested in any reason, excuses. Unfortunately did not help my husband agreeing with them. I cook fresh food every day, and have always gone out of my way to encourage my children to eat the right things. It can be so disheartening when your child continually refuses food, let alone being put down by everyone else.

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Both my boys are fussy eaters in different ways, I no longer worry what others think as long as they are healthy. My sisters boys were both worse, the older one got to a point when would only eat one thing at a time, mind you he is a real genius, was always under weight and my sister was continually criticized but it was none thing she done it was just the way the child was... all grown up now and eats most things...

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I see situations all the time where everyone is telling the parents and child they are wrong, just make them eat it, give them no choice, but I know only too well this does not work. What does it matter as long as they are happy and healthy, because if we stress it only makes the situation worse.

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If becomes a real problem get professional support, myself, I tend to prefer not to worry and let then have their fazes and stages as all children do... ASD children of course much more extreme at times, but as long as they are healthy try not to worry whatever anyone else says, after all everyone eats far more than they need...

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Childs Voice: 

 http://asplanet.info/forum/index.php?board=38.0

My list of Characteristics of Children to Adolescences AS symptoms:

http://asplanet.info/forum/index.php?topic=161.0

Understanding & Expression of Emotions..
http://asplanet.info/index.php?option=com_content&task=view&id=66&Itemid=110
Love and Asperger's syndrome
http://asplanet.info/index.php?option=com_content&task=view&id=84&Itemid=130

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Should my daughter have a psychological assessment?

My reply: Having only discovered my many neurological differences late in life aspergers, dyslexia, dyspraxia.... if only I had known earlier in life, as to grow up and not knowing means we grow up confused, frustrated with a world we find hard to connect with, being diagnosed was the biggest relief in my life, as without knowledge we can not be accountable for often even the way we treat those we love, if we know no different or are unable to understand how can we accept self. I am just differently able and my new found knowledge has for the first time in my life given me the confidence to be, before It was like I lived in the shadows of life, often growing up without understand can cause so much hurt, pain and harm and yes some of us may need some extra support for a while, so if a psychological may be able to help, I can not see the harm, I can only see the pain and hurt from not getting good support and understanding...

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No label ever changes who we are, but until I truly started to understand it was like my autism heart, very core was missing...

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Response: very good point beautifully put!!! Thank you!

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Improving Speech and Eating Skills in Children with Autism Spectrum Disorders -

An Oral Motor program for Home and School - By Maureen Flanagan

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Maureen Flanagan: I am a speech/language pathologist who has worked with children with a variety of speech/language disorders for over 28 years. I have worked with many children with a diagnosis of autism spectrum disorder. To various degrees, all of them exhibited an oral-motor disorder. Specifically, they lacked oral awareness, normal oral sensitivity, oral stability and separation of tongue and lip movements from jaw movements, inhibiting their ability to develop the oral movement patterns needed for eating and speech production.

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The easy-to-implement treatment program presented in my book has benefited countless children in terms of their oral-motor skills, speech skills, expressive language skills and communication skills. I wrote the book to ensure that many more children and families would benefit.

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The book introduces an oral-motor treatment program and much more. It also tells about conditions and terms commonly associated with autism spectrum disorders, normal oral-motor, speech and eating development, the evaluation process, how to set up the treatment environment for success, foods and activities that can follow the oral-motor treatment program, how to incorporate the program into typical routines as well as complementary therapies that can facilitate more normal movement patterns.

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The most practical lesson to be gleaned from this book is how important structured touch input is to the child's mouth and body and how easily it can be incorporated into home and classroom routines. This input helps to calm, organize, and increase awareness, thereby improving the child's ability to use and initiate movements for overall comfort and lifelong well-being.

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Excerpt taken from pages 1 - 5

Introduction
Suzie, age 5, has a diagnosis of autism spectrum disorder. She has a limited diet, preferring crunchy foods, such as pretzels, that are quick and easy to chew. Suzie rejects slimy foods, such as canned peaches, meats, foods with lumps, and most fruits and vegetables. She is a very messy eater and often stuffs her mouth with food. Her parents dread brushing her teeth because of the way she fights them. She sometimes gags when they approach with her toothbrush. Suzie spontaneously produces some single words and phrases but does not consistently imitate words and phrases after her parents and teachers. She produces a limited variety of speech sounds. Suzie will continue to have difficulty imitating words and phrases, expanding the variety of speech sounds, accepting new foods, and tolerating tactile input from others until this aversion to tactile input is addressed through oral-motor treatment.

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Evaluation of oral-motor skills has often been overlooked in treatment programs for children with autism spectrum disorders (ASD), partly due to a general lack of considering the development of the whole child. Thus, programs have often encouraged verbal imitation without focusing on the child's ability to process the sensory information and then produce the components of movements needed to produce a sound or a syllable. In the case of Suzie, this child is hypersensitive to tactile input inside the mouth. Suzie does not want to move the tongue vertically to the top of the mouth to produce a /d/ or an /n/ sound because it does not feel good to make contact with the palate or roof of the mouth. In fact, as we saw in the vignette, she may even gag when her tongue makes contact there. Oral-motor development is part of normal development and must be considered when looking at the child and her treatment program. They are the components that form the foundation of the sensory motor pat-terns that are practiced during the development of the simple as well as complex skills used while eating and speaking. Children with ASD, to varying degrees, are unable to register and modulate sensory information in one or more of the sensory systems (Ayers, 1979; Henry & Myles, 2007; Yack, Aquilla, & Sutton, 2002). This interferes with the ability to initiate movements, to plan movements, to sequence movements, and to develop a feedback system. All of these inhibit the development of oral-motor skills, in turn affecting eating, speech production, and communication.

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Brief Overview of Sensory Processing and Oral-Motor Skills
Ayers, in her book Sensory Integration and the Child (1979), documents the symptoms of poor sensory processing that can affect oral-motor development in children with ASD. The number of sensory systems that are not registering and modulating information affects the level of severity of the child's dysfunction. For example, the child who is able to process information through her proprioceptive, tactile, and visual systems but not through the auditory system will present a different level of functioning from the child who is not processing information well from any of these systems.

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The first child would have a sense of where his body is in space, accept being approached by others, and possibly gain information by reading. But he would be unable to follow verbal directions, need frequent repetition of verbal language, and possibly be using scripted language to communicate. The second child would easily become overstimulated by information, causing him to over-react or under-react and become defensive. This child would present with a more severe level of dysfunction, given his oral-motor, eating, and speech production.

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Children with Differing Needs
Ayers (1979) cites three areas where children with autism have poor sensory processing - registering sensory information, modulating sensory input, and initiating movement. Each area is briefly described in the following.

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Registering Sensory Information
Thomas, 7 years old, was attending to a siren from a fire engine in the distance and not to his teacher leading a lesson. A hand on his shoulder from his teacher assistant and the use of a microphone by the teacher to amplify her voice brought his attention back to the lesson.

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Children with ASD often do not pay attention to information that is important, such as speech sounds. For example, instead of attending to speech, the child may attend to a background noise, such as the humming of a fan, not noticed by others around her. According to Ayers (1979), in such cases, the part of the brain that "decides" which information to attend to and what to do about that information is not "registering well."

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Emily, a 5-year-old girl with a diagnosis of ASD, had difficulty registering touch sensations.

She never felt drool on her chin or food on her face. Emily also stuffed food in her mouth with no awareness that her mouth was already full. Emily's mother wondered why she had to constantly tell her daughter to wipe her face or take small bites and swallow.

This is commonly seen in children with ASD, but in varying degrees. In-deed, the ability to take in and respond to information is inconsistent with-in and across individuals. Motivation, strong sensations, and firm input are needed in order for these children to respond optimally to sensory input.

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Modulating Sensory Input
Terry, an 8-year-old boy with a diagnosis of ASD, had difficulty modulating touch input. He could not tolerate the way his clothes felt against his skin. He spent a lot of his time pulling and tugging at his clothes. He frequently stood up and pulled his pants up at the waist. Instead of filtering out this touch sensation, all he could think about was how his clothes felt at that moment. This made it difficult to attend to another child trying to talk with him or to his teacher during a lesson (Yack et al., 2002).

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The brains of many children with ASD are unable to control sensory input, causing them to receive too much input or not enough. In other words, the child is unable to balance the sensory input (Henry & Myles, 2007). In the first situation, the child is bombarded by input from one or more sensory systems. In the second, the child is not getting enough stimulation and, therefore, may crave input from one or more sensory systems.

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Another example involving the tactile system (touch) is the child who needs strong, firm touch in order to register input but then quickly becomes overloaded and reacts defensively. This child is unable to regulate and integrate this input into his body awareness and make sense of the input once it is registered. This can result in oral-motor planning problems. An example is the child who has difficulty moving her mouth when requested to do so. She cannot stick out her tongue when asked or when given a visual model. However, the child can be seen to stick out her tongue while automatically licking a lollipop. It is difficult to plan movements when you do not have a good sense of your body. Further, when the child cannot organize and plan simple movements, he has trouble developing more complex behaviors such as speech production. In brief, the ability to plan movements depends, in part, on the accuracy

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Behavior Analysis in Practice - in practice I agree, in reality can be a different story, as we are all individuals and many of these practices I feel are not flexible enough "turn up for a certain day for a 1 hour session, life does not work like that and then be told how we should act to fit into a mainly NT society, maybe I would prefer the NT society in general to allow for my differences and embrace me for who I am.
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I have tried being what I am not, acting the part for years,wearing the mask - does not work, I am still inside. Would you ask a black person to change there skin colors, not so long ago the majority thought they could, sadly some people even tried to bleach there skin, the point of saying this is if we do not stand up for who we are, who will.
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Saying that I do feel ABA is helpful for everyone, not just people on the autism spectrum, as it makes us think about our own actions, what we do and how that impacts on others and ourselves... but feel there should always be a choice, unless the behavior if so out of control it becomes damaging to society in general.
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I often feel because others can not see my differences, they are a lot less likely to understand or want to accept, many other differences are allow because seen. I feel the more we read up on behavior analysis and how it impacts on society in general all good, but we must all be allowed to be treated as the individuals we are.. so to me I think we should embrace our differences, not conformity to lose oneself.

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"What is Behavior Analysis?

Behavior analysis is the scientific study of behavior: Behavior analysts ask, Why does behavior change over time? They seek answers by looking at the biological and environmental factors, although they are primarily interested in the role of environment in behavior change. Many behavior analysts do either basic or applied research. Others specialize in applying behavior change principles to enhancing quality of life. To read further information about behavior analysis, click on low below:

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Journals of the Association for Behavior Analysis
http://www.abainternational.org/BAinPractice.asp

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We all need to understand what ABA is, and what is not acceptable. Does anyone human have a right to decide on how you should act, a child is a gift that you do not own, but may help to guide into often a very hetic world. I truly believe what you give, comes back - especially in regards to children - if we do not protect and guide them, who will and who's to judge or blame, if some of our young adults lose their way for a while!

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Aspie parents - Can we be good parents someone ask me once !

YES of course everyone can be, as many of you know I am a mother with Aspergers and my older son is also on the autism spectrum, as far as bringing up children who gets it right all the time anyway.  If the child's happy and doing ok what's to worry about, I can only speak for my son and my story but I know he is happier than most, doing extremely well and a wonderful individual.. so I must of done some think right... in fact being on the autism spectrum myself has helped our relationship, we have a deeper understanding and he is not frustrated and angry like many children that are not understood.
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When he was younger yes I found it difficult sensory wise etc... and my anxiety levels were quite high, but what I hear so are most mothers, children on the spectrum can seem quite demanding, but that's only because often they get bored easily, but I have found the constant need to keep him occupied a lot easy than the average person as my mind also very rarely shuts off... he has a great relationship with his brother and they are very close and he is not on the autism spectrum, but enjoys his quirky sense of humor.
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As for being a parent we often get put down for our misunderstood difference or the child's, but this is nearly always caused by ignorance of others... I feel we make just as good parents if not better at times, as usually very home orientated, more interested in the children than self and if any think we wear ourselves out over parenting if that's possible, as we do tend to over think, worry and analysis things in a need to want to get it so right... all the aspie parents I know are great parents and even stranger the children all seem to do doing extremely well and wonderful individuals in their own right, unless in want to stereo type everyone on the planet and then life would be boring!

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You can never know too much about Aspergers

Syndrome. It is a life-long learning process

If you or someone you love has the disorder.

Knowledge is the key to understanding

symptoms, causes, and treatment options

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Children are often the least heard, but most damaged - so it's no wonder

they become angry, frustrated from time to time, which is often just a misunderstood difference. We are meant to act, conform and fit into a

NT stereo type world, as often that makes us feel like ducks out of

water, and all everyone does is complain and want to cure us for being

differently able... no wonder some of us shout out now and again, but pointless as rather than listen far too often we get given another label!


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___________________________________

If you want to reprint and/or translated must make sure full

copyright notice is retained and the content is not altered.

Copyright © 2007 Alyson Bradley

www.Asplanet.info - Aspergers Parallel Planet

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ZAC Browser - Zone for Autistic Children http://www.zacbrowser.com/  and
To all those none autistic parents of autistic children who want to know!  

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User Comments

Comment by GUEST on 2008-10-06 22:16:44
Thanks, asplanet, for your very classy reply to a comment that could have elicited a meltdown. I know I would have had to count to ten. From sartresue. 

What a great insight, I found extremely helpful. 
Thank you so much.

Comment by Guest on 2008-10-06 23:59:14
Thank you soo much for your email! And for keeping in touch! I thought I'd let you know how things were working(?) out here....! 
 
After I last spoke, I have contacted the Special needs teacher at school, and after telling her that I was getting information together before I could come in and talk to her..Including the Code of Practice that the school now has to adhere to (it was a Private school before 1st September and therefore governed by different rules...) She kinda had a wobbly on me and started to defend herself!! Understandable I feel.. However, I pointed out that the reason I was collating this information, was so that I was clear what their obligations for Tom were.. They are, as I suspected, all educationally related ie: how to get him through his examinations, which we both know is sort of not where our boys "fit in". 
 
However, as these were their obligations, I felt for Tom's sake, I would make sure he was at least getting this help.. I diplomatically wrote back and said that this would be very helpful. It is Tom's confidence in his own abilities that is a big stumbling block for him, and if he only believes in himself, he can achieve soo much more.. It will never take away his anxiety over social interaction, and communication, and these will continue to be obstacles for him trying to "fit in". As on many levels he can understand, this also means he can also understand he is different. We have constant conversations about "friends" if he has any, how he knows he has them, how he holds a conversation with them, when he thinks he is unable to...All very hard when you are 15! 
 
But his "innocence" is wonderful, and I AM AWARE how I am not experiencing the difficulties that my other friends with teenagers are experiencing.. Girlfriends, Drinking, Hanging out with friends, Smoking... For Tom all these are pretty much taboo as his rules say they are wrong.. No questions asked! 
 
When I had set up communication with his special needs teacher.. via email.. I thanked her for all that she was doing to help Tom (makes her feel better!!) and then had to try and explain to Tom that even though he was now getting this help, he had to do his part..! He is into sayings at the moment, his favourite being "what goes around, comes around.." though he does not always use it correctly, which can be quite funny xx bless him xx So I taught him another "You can take a horse to water, but you can't make it drink!" I explained that Mummy and the teachers were taking him to the water, but that he had to drink..He had to do his part and complete the work on time, and his homework on time, and ask when he didn't understand. The following day in the car on the way to school I asked him what he was today.. A horse Mummy, and I'm going to try and drink! 
 
EASY! I hope so! 
 
The other thing I want to share with you is this.. Tom won a choral scholarship to Bristol Cathedral School and was a chorister for 3 years. This involved 7 days a week practice, sometimes twice a day, and 6 services a week.. A massive commitment for me, and his younger brother Will, who often had to come to the services, or be fobbed off on someone else, as his Dad and I are no longer together leaving all the ferrying around to me!! Tom has an exceptional voice and in his final year was entered for BBC Chorister of the year and came in the top 50 (out of 600) and was Head Chorister.. 
 
His speaking voice has now broken, but strangely his singing voice hasn't, which I understand is extremely unusual. There is a choir in the cathedral for ex-choristers and I have been trying to persuade him to go.. To no avail. The other night driving home from school he said this.."Mummy I think a lot of bad things have happened to me since I left choir..My Grandma Gladys ( my gran aged 92) died this year; my Daddy has just lost his job (architect with a business working for major house builders in the UK - not good! this is all our main source of income!); my Grandad has almost got cancer (my Dad, he has been diagnosed we are waiting for the results to see how far it has spread), and my Grandma Tish has fallen and broken both her wrists and is very poorly (week last Thursday - my Mum! Nightmare!)....Yep! a lot of bad things Tom! "Well I was thinking - God has given me a wonderful gift and I am not using it at the moment, I think it would be a good thing if I tried singing once again, and returned to the Cathedral.. 
 
It was a very difficult time for us.. but also a wonderful time too! The music was incredible and it was a privilege to be part of it... It was also the most balanced time in Tom's life, where he had a purpose, he felt he belonged, there was an incredible amount of disapline, and he felt valued.. But most importantly he was there because he had a talent that was not maesured by exam results!! I hope and pray he can find this again x but also love his logic and how he's worked this out! 
 
Thank you once again for keeping in touch x I hope we can continue to write? It soo helps to speak to someone who so knows what Tom and I are going through... 
 
I look forward to hearing from you.. 
 
 
My reply (AsPlanet): 
Your email was truly beautiful, emotionally I felt and sensed the love and believe you have for your child. 
 
Schools can be very defensive, and as you say understandably as I have found, but I also realize the pressures they are under, often under resourced and funded. But feel you handed it exceptionally well. When ever parents have problems I always remind them that there child does have rights to a good education and its always worth reading up on the schools "Code of Practice"etc.. often a lot of thought goes into witting them, and gets forgotten at times. 
 
"Tom's confidence in his own abilities that is a big stumbling block for him, and if he only believes in himself, he can achieve so much more.." great advice and the children I have worked with have found just a little bit of extra encouragement, can make the world of difference to them. I would love to add this email to my web site, as such great advise and insight, more parents need to take control of the situation and not blame the schools or someone else, went we all work together miracles seem to happen. 
 
My 14 year old like yours is also not interested in "Girlfriends, Drinking, Hanging out with friends, Smoking.." in the same way the other children are, I was the same when younger, we seem to keep an innocents about us and grow up later, but something that needs to be watched and good guidance needed, as can be easy influence into situations they are not ready for. I eventually got it right as have been married for many years and have my own children. But got it so wrong for far to long, I think I now over explain to my son but often when we do settle we are honest, faithful, caring individuals, who like everyone else just wants a place in this at times unforgiving world. 
 
Congrats on "Tom won a choral scholarship to Bristol Cathedral School and was a chorister for 3 years. This involved 7 days a week practice, sometimes twice a day, and 6 services a week.." I was always happiest when training 7 days a week, my passion was sport and feel if anyone had believe in me, encouraged me it would of made the world of difference and my journey in life would of been a much happier one. Use aspie's love to know what and when we are going to do, I feel partly its because we find change hard and we like routine. I have always liked walking or jogging, as I can control and feel the rhythm it relaxes me, we have the traits to be good at many things with the right support. 
 
"God has given me a wonderful gift and I am not using it at the moment" we often are very insightful, have a clear cut logic and if believed in can push boundaries other have not thought of before. Since discovering Aspergers my world and friends have extended world wide and I like to think it will be the same for our sons when they grow up. 
Warmest regards Alyson

Comment by Guest on 2009-03-15 17:29:12
HELP 
My friends son who is diagnosed with aspergers and Aadhd is always the one out of control, wanting attention. And when I approach her she just says wait to you have your own, or you have no idea, I want to help but not sure what to do, I tried suggesting medication to help calm him down and she got really upset, saying he is not sick, just very active! 
 
My reply: 
First as outsiders however we see the situation, if we do not have children ourselves we never see the same as any mother/parents would. When I was single and never had my own children, so many things seemed a lot worse and thought my sister was doing so much wrong with her children, then I became a parent myself and had to apologize for even thinking some of the things I had thought, both of her boys were near impossible to deal with, especially her oldest child, the now genius. But what I have realized since understanding myself is that it was not what she was doing, it was the lack of real understanding, connecting on all parts... also these children can be very demanding and often create situations for attention, like wanting things there own way, as a safeguard to control the situation, bore easily etc, etc... and the stress of bringing up ASD children can be huge for all involved, if has ADHD as well can be exhausting for parents as children are continually active, I was like this myself when younger and so glad no one medicated me. For now maybe the best thing you can do is offer to give her some time out, something all parents need anyway and at the same time will help give him another outlet and hopefully someone he can talk to, also when people take the time to get to know these children often amazed how interesting they really are.  
 
Some of the children at my local school play up the way your nephew does and when I ask them why, they simply say they are bore and they like pushing the boundaries, the reactions they get! with my sisters 2 boys and mine when they really played up for attention what worked the best I have found is totally give no reaction, they soon get bore, if not getting any response! Otherwise they end up stressing others and then the stress impacts on them almost like a circle, so we break the circle by not reacting to some actions..... and the other thing talking with the child, often intelligent way beyond there years... and maybe if feel listen to would not feel so out of control, its the not knowing that also often stresses ASD children out a lot at times... so the key is not controlling, but getting to know them, connecting and encouraging... as what so often happens people are so busy telling overactive children/minds off, they forget the child! 

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Comment by guest on 2009-07-16 20:42:35
It's profound. Sometimes I tell my son to act as his age ( as other kids do ), I may trying to make him " not to be as he wants to be". Make me think...think...think. I always tell myself that I am accepting the way he is, but I may not. Thank you, Alyson for a chance for me to re-think.


Last Updated ( Jun 13, 2010 at 06:51 PM )