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| You cannot discipline away a difference, as each one of us a unique individual.! |
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| Written by AsPlanet.info - Alyson Bradley, plus various - UPDATED June 2010 | ||||||||||||||||||||||||||||||||||||||||||||||
| Oct 06, 2008 at 10:06 PM | ||||||||||||||||||||||||||||||||||||||||||||||
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Child / Adolescence / Young Adult Children are not things to be molded, but people to be unfolded" Charles F. Boyd . . 12 year old with AS interviews his mother http://storycorps.org/animation/ . Every child starts out with a whole world of possibilities before them, some are embraced, for others a total nightmare better forgotten... as we start to live life some are crushed and lost along the way, is it the child's thought when they grow and know no other way. Yes we all need to teach our children right from wrong give them the strength to do what is right and for those who are lost reach out and help... because if we pass by the weak, mean and angry individuals, we then without trying include them into part of society. ? . My husband only believed my late hours at night was not because of him, but me when I could explain reason for why, but he still forgets or simply feels sorry for himself at times, however much I tell him it’s not him but me, others truly have to get to realize it’s not what children do or not, it’s the way some of us are wired, my son like myself never needs as much sleep and I have accepted that, as long as homework done and he does well at school etc.. My point is do not punish others for the wrong reasons, for our lack of insight, understanding… you may have your own expectations, but we are individuals also!. . . At School AS children can vary greatly, depending on co- morbid conditions and other factors. The children can be over sensitive, take comments to literally, seem withdrawn, extreme, loners, no eye contact, may mumble, may seem needy, annoying to some, continually move around and fidget, stim, ask endless questions! . . .. Each and every one of us has a right to be that unique individual we were born to be and when children not allowed, they know no different, all to easily for them to be lost in an ocean of nothingness, until they find the courage to swim themselves... . Children are all different, learn differently, having to conform only leads to frustration and often all too easy to become anxious, especially if they feel on the outside, on the edge of life looking in through everyone else's windows. And far too often can only dream that one day they will be and simply fit like everyone else, as when no one explains how can they know that they are not all wrong, but simply different. Peer pressure and a need to feel and be like others, if continue to feel shut out often withdraw and step back into their own safer reality, where no one causes harm, the shutters come down and the damage starts! Autistic children experience the world differently than most children who are not on the autism spectrum. They have trouble expressing themselves and tend to shy away from contact with others. They can have trouble connecting body language and facial expressions to emotions of other people. They can have trouble understanding words and phrases. They can get frustrated when they try to express themselves. Basically, they have problems with verbal and non-verbal communication, social interactions, and leisure or play activities. It is a personal thing-every person with Autism is different. These are generalities. There are different levels of autism. Some people are high-functioning and some have more hurdles to face. . I was born different, as a child it was hard everyone telling me no, no, no without understanding me.. as a child I get bored so easily, i didn't play up for attention, I just need things to do, others to understand and allow. Still as an adult now I am like an over active computer at times and do not switch off easily, so before you judge or tell me off - PLEASE try and understand my differences, as any misunderstood difference is damaging and will only caused me more frustration and you more pain... . . Out of control / Hugging does it work! My thoughts on this is sometimes it works and sometimes not, its getting to know our own children. It really helped sometimes for me and my son and at other times I just had to give my child space, and myself... but that was also partly when he was feeding off of my own stress! ASD children I feel pick up more, sense situations more and can be affected just by other things that are going on around them, taking them out of their comfort zones and overloading them sensory wise, these are the times my child needed just a quite space alone. . .. Their family, their choice: The word Aspergers, Autism spectrum disorder is huge to start for many parents and often easier for them to discover in their own time, in their own way as to be told many just become defensive and /or feel it’s there thought. If a real problem it may be worth approaching the person involved, but very gentle steps advised, just as being concerned not just for their child but for both of them, maybe over a meal. It’s so important how the situation is approached and needs to be in a concerned support role, suggesting a child has a spectrum disorder to anyone unless imitate family is wrong, as if the person does not understand they may just dismiss and back away from you. Discussing actions of another child and wanting to help and make positive suggestions will be a lot more effective, if everything does not work, if other person wants to listen then maybe mention ASD just as a suggestion, we have to remember not everyone wants to label their children and it has to be their choice. . Meltdowns, anger is are often cause by frustration, being misunderstood, I have experience of my child having when younger huge meltdowns, what I found worked is ignoring and when calm enough talking to them, however young, they need to know your listening.......if child gets out of control of course safety first, but then try and give as little attention too as possible, it does work. AS children often have heighten senses and so your mood may well affect them (sensory overload), if things are getting out of control try and put them in a safe place and remove yourself from situation, as quite often you may well be the one making it worse. . Meltdowns, shutdown out of control, frustration, anger or just not being understood, the good news is these children often are very intelligent and I found by getting down on their level (seeing through their eyes) helped me to understand and communicating, as firstly AS children hate any change, being out of routine and being told what to do, hate feeling they are being controlled as like to feel have some sort of control themselves. They feel safer that way, so include as much as possible my son understood at a very younger age, more than I even realized then, so remember always talk to them, not at them. But also like any children clear boundaries are vital, especially with AS children as they hate not knowing, always over prepare and routines always help... . In theory if you believe enough in the intelligent spectrum life itself at times trying to impose and change the very fabric of who we are as individuals I fell piontlesss. What I am trying to say, maybe your child’s frustrations may simply be a disconnect, and it may be hard for you to understand how intense at times ... . When I had young children I use to overload sensory wise and now and then would go to my basement to offload and simply scream, it was like all my built up excess intake was released brilliant.... at the time I had no idea why and that was scary, but simply had to, like an intense build up that needed to be released, now I so get it... and sensory wise even my husband’s breathing at night can set me off, but now I know no one’s thought, so much easier to deal with and have excepted as a part of who I am, I am ok with it and those that care for me accept mostly. What I am trying to say, maybe your child’s frustrations may simply be a disconnect, you not understanding how intense at times sensory overload can be! . . Emotional Chaos, sensory issues overloaded, shutdown “it’s important to understand your child’s emotions – see as they do” http://asplanet.info/index.php?option=com_content&task=view&id=66&Itemid=110 .
The misundrestood Child:One of the many threads on AsPlanet Forum: http://asplanet.info/forum/index.php?topic=626.0 Quote "This is all so true. Many people think they know about AS then when you talk to them they actually don't! I have had (like most parents) many ups and downs with our now 12 yr old beautiful, fiery daughter. The light at the end of the tunnel is when she shines; she shines bright and I have a good feeling about 2009. Most of our barriers have been created by society who misunderstand her AS and how it creates who she is and how they can help her to achieve her goals instead of hindering. It's a long hard path we tread, but as a family we do it together and we venture to places others daren't go. Love keeps us strong." from one of many comments AsPlanet forum member - Join us, come chat, read, lots of on going discussions, many of us are on the spectrum so we do understand: http://asplanet.info/forum/index.php?board=6.0 . Friends: As a parent, you need to know that your child may well not be surrounded by friends. Don't worry too much about this, aspies don't usually need lots of friends like most NT children seem to. That's not to say that aspies do not get lonely, they often want friends some of the time or on their terms. But overall usually prefer less or just a few friends. So if your arranging a sleepover, it is wise to keep the numbers down to only a few friends and preferably one-on-one play. Team sports are not good for aspie friend-making but things where the child can operate semi-independently and with out competition, like karate, scouts as children get older often if sporty quite like sports such as dancing, running, rowing etc... can do in their own time, in their way. I have done team sports, but always felt like the outsider....
. Shyness may not be a sign of aspie, but feel it can partly be, especially for teenagers... I shouldn't have been shy of boys as had a twin brother and a brother a year and a half older I use to hang out with all the time, a real tom boy, which can also be a sign as we do not fit into social "norm" girl circles.... The whole boy girl thing, if a boy looked at me I would turn bright red this is because I had no idea how to respond, well not in a natural way like others and if I dare to look into a boys eyes, anyone it had to be love, my naivety kicking in here some of the situations I got myself into growing up, amusing now, but terrifying at the time. . Some think that I use to do as a child and still sometimes do, is hover around people. It’s that wanting to be a part of, but not knowing how. Attempting to converse but not sure I really want too. At times like this I may just say odd sentences, even repeating things I feel worth saying…, I sometimes do this with my boys now, will visit them in their rooms, or where ever they are for no reason, it’s just a need to be around them, a familiarity. So if your child is just hovering for no reason to you, there may be a reason to them. .Sport / Exercise -I can remember only too well how cruel other children can be, things may of changed to a point, but children still want to be the best, not the afterthought. Unfortunately I feel this will not change until the media stops stereo typing what we all should be like! . . . When time allows I try to help out at my local school with sport and other activities, some teachers have commented they have notice how some of the asd, neurological minded / differently able children etc.. relate to me and join in more. I feel maybe it’s because I understand them being on the autism spectrum myself. It does take a little extra care, time and attention, but always worth the smiles. Unfortunately unless more communities get behind schools, I feel these children often miss out, as without much needed funding the time and effort needed is not always available. . Your support and understanding is the key to unlocking a child’s potential - Don't be the one holding them back! When younger I wanted to learn so much and was easily swayed by often the wrong people and having no sense of real danger, it got me into lots of trouble. Do not get me wrong as also could be very stubborn, but I guess did not have any great set of friends / peers, and I often would take the more exciting path, well to me anyway and what the other children seem to enjoy, just bored me. . I grew up and had to learn the hard way; it took far to long and involved so much unnecessary hurt and pain..... Do feel early teens to late twenties is a really difficult time for most people on the spectrum and still feel nowhere near enough is done for them. There are lots of parents / child and adult groups. But the age when people on the spectrum can be most affected, they seem to be left out of the groups - in between somewhere. . . They can have over active minds that seem to race, it can be near impossible to focus, listen, and learn. If they are disruptive it could be to hide some of their frustrations. It can be confusing just trying to put thoughts onto paper if unable to focus and thoughts muddle. On top of this the children are often awkward and can be quite clumsy, so can already feel like the outsider and lack confidence. . So If has not already seen Occupational Therapist this I would advise as dyspraxia is very common. I was assessed here in NZ and for a good overall assessment I would suggest contacting someone like SPELD New Zealand http://www.speld.org.nz/ for an overall assessment, but unfortunately does cost.. But for me learning about my own strengths and weaknesses even later in life really helped. . Myself as a child who never received an education, confused and lost in a education system that was never design for a diversely different complex individual as myself, as Donna Williams would say a "fruit salad mix" as I like to think at times maybe be I am as mysteries to others as the universe, but that should not alienate me. I never ask to be born the way I am, I never ask for a school system to not include me, but being ignored by the school system, given up on followers you around for life, to be honest until I found Aspergers and discovered many of my other neurological differences I always partly lived in the shadows of life.. part of my life a shameful misunderstood difference that even scared me and killed my confidence. Real understanding helps unlocked lost individuals, I should know! . . University Students With Autism / AS http://www.users.dircon.co.uk/~cns/index.html . . ASD Teenagers quite often feeling like the outsider and may want to cut themselves off from the world. There are far too many who spend all their time in their bedrooms even taking their dinner up there to eat to avoid parents, family members, siblings and any social contact in general. At the very most some of them have access to the internet and chat on line. If your child’s is like this you or them are not alone, there is support understanding and help out there, but still far to little. .
Maybe it’s just real communication on both parts that is needed. Children often get label as bad when cannot sit still, but quite often it’s because they are bored very easily and often quite obsessive on certain topics and may not want to do anything else. So the key is really to make what they do as enjoyable as possible, with lots of encouragement, have found a little extra encouragement with these children can make a real difference. Find some think that interest them to keep their attention, which should help them focus. . . The best thing you can do for your child is to read as much as you can about asperger, which will enable them to understand them more. Parents unintentionally often try to change their children to what they believe they should be like, instead of really trying to understand their differences. Which often leads to parents feeling like bad parents, when they are not. . .I cannot state enough how understanding their differences, a good set of friend(s) and a little extra encouragement can make so make difference. . . Asperger's Here's how to build your hopes http://www.timesonline.co.uk/tol/life_and_tyle/article4876937.ece?Submitted=true Syndrome and the Voyage Through High School: Not the Final Frontier http://www.redorbit.com/news/education/1266639/aspergers _syndrome_and_the_voyage_through_high_school_not_the/ . . I have realised the need for more support, for people with Aspergers, especially young adults, and have already spoken to various groups to consider having more information on Aspergers. As there seems to be a lack of really good info out there (especially for young adults) everyone seems geared to helping children, or setting up adult groups - I feel a little concerned for this in between age, as at that age Aspergers without being explained correctly, can seem huge, and it would be so easy for them to slip through the system. . If you’re needing answers please ask me anytime and if I cannot answer you, I will do my best to find someone who can. As I know only too well young adults can see the world very differently to the average person. That can mean different priorities or different sensory experiences which can be exciting, but can also be exhausting, isolating and confusing. . Children with Aspergers face increased changes through puberty. The behavior issues of impulsivity can increase in both frequency and intensity. Children, who have experienced bulling and at school, may become increasingly aggressive, mixed up and confused.
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My school years were never easy, I was bullied incessantly. I am not sure if it was because of this or I didn’t want to or couldn’t conform and fit in like everyone else. Even though I was a good child if there was some think I did not like I would say and that included the teachers, which never went down well consequent I became very withdrawn, would walk around with my head down eyes fixed firmly to the floor….. The more others alienated me the more I focused on my own world, intense interest/obsessions with certain things. I hated and guess still do, anybody including family going through my things… its like an invasion of my world, maybe that’s why my sense of privacy was and still is of the utmost importance to me. .. Disabled student takes state to court | theage.com.au . . A misunderstood difference - various comments, studies show: "Children in 'learning difficulty - More than one in six school children has some form of learning difficulty,a survey suggested. Specialist learning support teachers across the country were surveyed for the charity Mindroom, which helps children and adults with learning difficulties. It claimed the results showed that more than 120,000 youngsters -17.2% of schoolchildren - were affected by a recognised learning difficulty, such as dyslexia, attention deficit hyperactivity disorder, asperger syndrome or tourette syndrome." . "Families of children with autism face unprecedented financial strain compared to those with other special needs, according to a new federal survey of nearly 40,000 children with special health needs. Parents dealing with autism pay more for health care, are three times as likely to cut back on work hours to care for children and are more likely to face other financial and marital problems, researchers found. " . "The siblings of children with autism-spectrum disorders, such as one child who may be profoundly affected by the disorder. "I'd kill for him. But I could kill him, too," said his sister, whose younger brother has Asperger's syndrome. "Because socially he needs help, so I have to protect him and be there for him more than a normal big sister would." . "I can so relate to this para. as I had to look after my twin brother this way and I was on the autism spectrum myself, it was bad for me, but a lot worst for him growing up, a living hell in parts. Of course neither of us knew back then, he now chooses not to know, and his only son has been diagnosed with Aspergers!" - for more on this see my profile and will be in my first book - . . Who was this Boy? Albert Einstein . Sue Larkey - Strategies essential to making the year a success for you and ALL your students http://asplanet.info/index.php?option=com_ . . . "You cannot discipline away a difference" I am often around children who I see as autistic but the parents and at times the children are not ready for the label, no easy tasks for any professional and guess the label will not change the child, but understanding makes a huge difference, especially to the child and often the relationship they have with the parents, teachers, school etc...sadly I see time and time again partners working along with the school wanting to change, get their children to conform without really understanding them, this just leads to boredom, frustration and anger long term and often a lot of unnecessary pain on the child's part, I wish more parents would get down on the child's level and truly see through their eyes.... . Even if the child is diagnosed often lack of real support, often schools even when they say they understand, still many seem to go out of their way to get the children to fit and conform rather than embracing these individuals... I just didn't have a clue whatsoever growing up! I just wondered why other people my age just 'clicked' and the fact it didn't with me made me want to give up, except I did not give up, I just became more desperate and reached out to all the wrong people. . I had to learn to adapt and change had no idea why I never fitted in and guess we do with age, but that has not changed the real me, understanding and awareness and having other likeminded people to talk to has helped me the most and having the confidence to find myself again. At times feel I should have been an actor as have learned to fit in and play the part almost too well, but it is often an act and takes an effort. And with each conversation within the ASD world with other aspies (people with Aspergers), as I am able to understand everything they do, think, say I feel normal... but only I guess really in asperger terms! .
Some of the suggested top therapies that have heard can help some children: Treatments that can help if children: Applied Verbal Behavior/ Floor time, Speech therapy, Occupational Therapy, Social Skills Groups, Inclusion school (not pulled out but mixed in with typically developing peers so he could learn alongside them), also some children need special diets not all, but diet wise as with any child a good balance diet and exercise always helps.... Speech therapy, something I feel vital if a need and children should not have to wait, as windows of opportunities can be lost.. . My child never had treatment, but do feel a lot of the things we do anyway naturally as parents, ie. Like applied behavior we teach our children from babies, how to be and act in the world and that should not always be on our terms, what works for us? But what works for each individual child, with clear boundaries of do’s and don’ts. Implementing can take more time with some, but feel it’s important to stick to some basic rules within every home, as everyone’s happier then. Some children it takes more effort but worth it for peace of mind, I have always found including my children in decisions instead of instructing has really helped, as quite often especially asperger children can be way beyond their years. Be flexible and adaptability is key and not to worry ahead, just to deal with each situation as need arises. . As a mother to a aspie child, if you are not on the autism spectrum the key really is to understand, read, research and read some more.... wanting to know and understand is so important, but one thing to remember all children on the autism spectrum, just like those that are not are different, as all children are unique individuals, as with any child as they learn and grow to me a difference has never been a problem, and I always just deal with each issue as and when... aspie children have their unique differences and to understand and accept, allow really will make a difference... . Was thinking back to when my boys were younger, the hardest thing for me was having to continually find them things to do, otherwise became bored and not always easy when they don't want to do what the other children do, we were always the family doing different things or things in our own way, I guess what I have learned try not to make them do things because others do, and if they do, try not to expect them to always act or be the same as everyone else, once I stop worrying about what everyone else seem to think and say and just got on with things, my life a lot easier.... . . . Celebrating Those With Autism Spectrum Differences Who Lived With Odds Against Them . So many press those with ASD toward normalcy. When all that is observed are the deficits and traits that tempt social ridicule, it's difficult to imagine any solace in future optimism. Milestones of early developmental behaviors are often the indicators of future success. A parent becomes convinced of Autism's permanence after observing many years of early development where very little changes. Even when things do change, each small step seems to be accompanied by a series of regressions where one often surrenders all hope. . One of many stories, Pauline and Hermann had a Son who was slow to learn and talk. His teachers said that "nothing would ever become of him." His older Uncle (the odd one that the family didn't like to visit) viewed the boy as "one of his own kind" and helped to tutor him, even when the Parents thought it was futile. This Son would clash with the school system; his grades would drop and he would eventually be expelled. If it were not for the intervention of one with "like thinking," world history would be entirely differen t. , . Children with Asperger's: 21st Century Brain Trust http://www.businessweek.com/bwdaily/dnflash/content/nov2008/db2008113_305056.htm . Quote: "Kids with Aspergers (already) have difficulty making sense of the world around them, so if you throw in puberty ... it's even a more difficult time," Gatrost. . . . Adolescence can become a very difficult time for these young adults, as peers may no longer be willing to tolerate someone who seems different. Moodiness, depression and anxiety can also develop in adolescence due to hormonal in balances, and the increased separation of the young adult and their peers. . This is a time of their life when social demands become more complex and it becomes increasingly important to be able to understand social cues. Young adults can be more vulnerable to manipulation by others and peer pressure. . They are likely to experience more rejection among their peers, which can lead to them feeling very isolated and confused. Society generally embraces different people if in the spotlight, and the ones that do make it usually have great support and belief in themselves. The real problem with society in general is people avoid what they do not understand, and always to ready to criticize - often leading people on the autism spectrum feeling inadequate and lacking in confidence. . Young adults can already feel quite excluded and not having anyone to share their deepest, darkest secrets with, or feeling not able to because of the lack of understand or reaction if mention on the autism spectrum, end up not having the same closeness through friendships as others. This can lead to feelings of closeness becoming muddled with rumblings of desire. Not knowing how to interpret all of this, there thoughts of closeness and warmth can merge and both become sexual in nature..
These young adults need to learn that there is more to relationships than sex. Thinking back to myself I would often latch onto people for all the wrong reasons. Quite often going for non stereo types of relationships, maybe this was because never felt fitted into the "norm”, and easy influenced by others. Often lacking the confidence to understand their own emotional differences and mechanics of intimacy. . . Adolescents on the Spectrum http://www.chantalsicile-kira.com/book2.html The Romantic Lives of Young Adults with Asperger's Syndrome If I was in a wheelchair would you still discriminate against me http://asplanet.info/index.php?option=com_content&task=view&id=79&Itemid=125 . . . I know most young adults you could say learn from their mistakes when growing up, but quite often the emotional side being a little confused. We can be a little naive in this area and I myself became desperate to find a partner, thinking it would fill the void, the difference in me that I felt was lacking. Often going for inappropriate partners, being attracted to the wrong sort of people, older people, as thinking their wisdom may help fill in the gaps, this usually leads to insecurities in who we really are, more confusion - as long term we really need to look within and understand ourselves, before committing to anyone else. Of course none of this is at all easy, everyone has problems in relationships and making friends etc.. but it can be so much harder for the child on the autism spectrum, so we need to remember and take this into account. What makes it harder is that no two adults/children on the autism spectrum are the same, so there are no easy answers. All we can do is help equip our children with an understanding and to ensure they do not get lost soemwhere in the whole process, or compromise themselves or their values. Discuss, discuss from an early age, good communication really makes a different. . As I grew up with Aspergers, I know only too well the important as a young adult, how vital it is for real support. Because without good support, guidance and help. These youngest can end up taking substances to find answers, unfortunately asperger people whatever they do, can become quite excessive. So if they decide to drink water or alcohol, when out. Only too often this can be too excess. Because of compulsive tendencies, and the added pressure of feeling awkward in social situations. . If you, your child, partner, friend become angry, which can be the start of depression. Try and figure out exactly what's setting them off, then help them, try and change the situation and/or the environment, also develop some techniques for handling anxiety when it does turn up. Sometimes changes as simple as changing the lights, lowering sound levels, reorganizing the schedule, or counting to ten can make all the difference. Just having someone to listen and understand can completely change a situation around. . Depression and anger are 2 very real issues quite common in Asperger syndrome, part of the problem comes from having conflict between longing for social contact and an inability to be social in ways that attract friendships and relationships. Even young children seem to know that they are not the same as other kids and this gets emphasized in the social era of adolescence. Many cases of depression, in fact, begin in adolescence. Anger, too, comes from feeling out of place and being angry at one's circumstances in life. For more information on depression see the following links: http://www.urge.co.nz/, http://www.outoftheblue.org.nz/, http://www.mentalhealth.org.nz/. . Depression quite often develops in the pre-adolescent or adolescent period in children who have high-functioning autism or Asperger’s Syndrome. This may either be a reflection of comorbidity with manic-depressive illness or be seen as a reactive condition following in the footsteps of feeling socially awkward and of being an “outsider”. Many adults with Asperger’s Syndrome or high-functioning autism apply for psychiatric help but are only occasionally correctly diagnosed as having an autism spectrum disorder. We have seen our previous patients diagnosed with borderline personality disorder, antisocial personality disorder, paranoid disorder, psychosis, and schizophrenia. It may be a matter of the adult psychiatrist not being familiar with the history and symptoms of an individual with Asperger’s Syndrome/high functioning which makes him/her liable to make a diagnosis of a condition with some overlapping symptomatology for which there is a well-known framework. [Asperger’s Syndrome and High Functioning Autism: Shared Deficits or Different Disorders?Gillberg, C, M.D., Ph.D., The Journal of Developmental and Learning Disorders;5:79-94. - to view more: http://asplanet.info/index.php?option=com_content&task=view&id=69&Itemid=113] .
A number of people with autistic spectrum disorder are involved in the criminal justice system as victims, witnesses or offenders. I have heard there is no evidence of an association between ASD and criminal offending. In fact, due to the rigid way many people with ASD keep to rules and regulations, they are usually more law abiding than the general population. . But I do feel that ASD people are more at risk as victims of crime rather than as offenders. Often being quite naïve and unfortunately easily lead, if get involved with wrong peer groups when younger. And if in situations that get out of hand, because can be too honest, this can be misinterpreted to easily. Also quite often people on the spectrum have other associated conditions, learning difficulties and mental illness, which can cause so much confusion and misunderstand from all sides. . . Starting Points (Children and young adults with AS) One of many book reviews, lots more information on forum: http://asplanet.info/forum/index.php?topic=683.0 . . Vulnerability (some of the problems young adults may face)
This is just a generalisation as asperger people are all individual and are affected in different ways, but some of these points can be only too real, when left isolated and misunderstood. People with Aspergers are very vulnerable. Adolescence brings about the struggle to cope with the confusion, stress and isolation of their almost "alien" world. Suicide can become a real concern, being an adolescence can be hard enough and already many of these young adults have communication problems. So it is vital if having to come to terms with being autistic, they feel understood. . Some other typical problems that may be faced by those with Aspergers include. Are more prone to bullying, teasing and exploitation, because their behavior is seen as eccentric, peculiar and non-conformist. Trouble with seeing the "bigger picture" due to their focus on specific detail. This can be a problem because they cannot see the consequences of their actions or put things in context. Extreme stress and confusion if a routine changes e.g. bus coming at a different time, shop out of their favorite brand. A problem with planning, because it requires the ability to think hypothetically, and predict consequences and trouble putting their thoughts into words and cannot articulate their frustrations, fears or how their condition affects them. . . Do ASD children really need a cure, or maybe just acceptance, understanding and support to help develop our young individuals into confident young adults as they so deserve... . . Nothing Wrong with our Child! One of the biggest problems as I see it is people not wanting to know and feel this is partly due to other peoples prejudice. For some reason lots of people seem to not want to know, because of stigma “not the norm” which of course is due to quite simply lack of knowledge and understanding. . Aspergers is just a different way of thinking and seeing things, really. By not wanting to acknowledge this, you could hold back your child’s education. If your child is on the Autism spectrum please embrace their differences, its apart of who they are. . Quite often the parent(s) are the first to notice, that their child is a little different from other children. So many times I see or have heard the parents wanting to do something, but the grand parents, friends and even the schools saying “nothing wrong with your child. They just need to be told “a bit of discipline will sort them out!” The joke is they are right, there really is nothing wrong with their child. . I have even heard a storey where a farther refused to listen to his wife, to the extent he decided there was something wrong with her, and ended the relationship. The sad thing is there really was nothing wrong with the child, they were just different and had different needs. Why do some people feel if their child is anyway but in their mind the excepted norm! it’s a reflection on them, they really do need to look at themselves. . By not acknowledging their differences, you could be letting your child suffer unnecessarily and holding them back, not just educational wise. Because if a child is continually being told they are wrong, put down or simply just being misunderstood, the child will start to believe it’s them that are wrong, themselves. Which can lead to all sorts of behavioral problems? This is just my view and a generalisation, and I do realize there are lots of great supportive people, grandparents out there. . By embracing your child’s difference, instead of trying to change and make them conform, it will make for a happier situation all round. As often these children are already feeling confused and misunderstood to start with, and can become very frustrated and angry. Time and time again, others want to blame the parents when a child becomes disruptive, instead of really dealing with the real issue; it just takes a little support and understanding to make such a huge different. . . We Are Not Like the Other Kids http://firefox.org/news/articles/1432/1/We-Are-Not-Like-the-Other-Kids/Page1.html . . Fussy Eaters Most of us do not like some food and can go through a fussy eating stage. But it’s not the same for everyone, children with Aspergers and Autism can often have extreme food selectivity, because of sensory problems in regard to touch, smell, hearing, taste and sight. Often this problem is well beyond the scope of what parents would call fussy eating. . The child may only eat a very limited range of foods and/or eat very small quantities of food. These children can be quite selectivity wanting to eat from the same plate or eat food of the same/certain colors. There are positive strategies that can often help with extreme food selectivity, being aware of sensory issues such as textures, smell, color, cold and heat will help. If you do have a problem with your child, it’s not necessary you, please do not feel bad by seeking professional help, your general practitioner can help. . I know only too well with so much pressure on parents and children to eat the right foods. Before criticizing anyone else, take a step back as there really are valid reasons why some children are unable to follow the norm. I get so fed up with other people thinking they always know better, please do not judge without really knowing, there are many reasons autism being just one of them. . I went away a while ago, and as one of my children is quite selective, the couple we went and stayed with took it on themselves to continually put me down as a parent and really was not interested in any reason, excuses. Unfortunately did not help my husband agreeing with them. I cook fresh food every day, and have always gone out of my way to encourage my children to eat the right things. It can be so disheartening when your child continually refuses food, let alone being put down by everyone else. . Both my boys are fussy eaters in different ways, I no longer worry what others think as long as they are healthy. My sisters boys were both worse, the older one got to a point when would only eat one thing at a time, mind you he is a real genius, was always under weight and my sister was continually criticized but it was none thing she done it was just the way the child was... all grown up now and eats most things... . I see situations all the time where everyone is telling the parents and child they are wrong, just make them eat it, give them no choice, but I know only too well this does not work. What does it matter as long as they are happy and healthy, because if we stress it only makes the situation worse. . If becomes a real problem get professional support, myself, I tend to prefer not to worry and let then have their fazes and stages as all children do... ASD children of course much more extreme at times, but as long as they are healthy try not to worry whatever anyone else says, after all everyone eats far more than they need... . . Childs Voice: http://asplanet.info/forum/index.php?board=38.0 My list of Characteristics of Children to Adolescences AS symptoms: http://asplanet.info/forum/index.php?topic=161.0 Understanding & Expression of Emotions.. . . Should my daughter have a psychological assessment?My reply: Having only discovered my many neurological differences late in life aspergers, dyslexia, dyspraxia.... if only I had known earlier in life, as to grow up and not knowing means we grow up confused, frustrated with a world we find hard to connect with, being diagnosed was the biggest relief in my life, as without knowledge we can not be accountable for often even the way we treat those we love, if we know no different or are unable to understand how can we accept self. I am just differently able and my new found knowledge has for the first time in my life given me the confidence to be, before It was like I lived in the shadows of life, often growing up without understand can cause so much hurt, pain and harm and yes some of us may need some extra support for a while, so if a psychological may be able to help, I can not see the harm, I can only see the pain and hurt from not getting good support and understanding... . No label ever changes who we are, but until I truly started to understand it was like my autism heart, very core was missing... . Response: very good point beautifully put!!! Thank you! . . . Improving Speech and Eating Skills in Children with Autism Spectrum Disorders - An Oral Motor program for Home and School - By Maureen Flanagan . Maureen Flanagan: I am a speech/language pathologist who has worked with children with a variety of speech/language disorders for over 28 years. I have worked with many children with a diagnosis of autism spectrum disorder. To various degrees, all of them exhibited an oral-motor disorder. Specifically, they lacked oral awareness, normal oral sensitivity, oral stability and separation of tongue and lip movements from jaw movements, inhibiting their ability to develop the oral movement patterns needed for eating and speech production.. The easy-to-implement treatment program presented in my book has benefited countless children in terms of their oral-motor skills, speech skills, expressive language skills and communication skills. I wrote the book to ensure that many more children and families would benefit. . The book introduces an oral-motor treatment program and much more. It also tells about conditions and terms commonly associated with autism spectrum disorders, normal oral-motor, speech and eating development, the evaluation process, how to set up the treatment environment for success, foods and activities that can follow the oral-motor treatment program, how to incorporate the program into typical routines as well as complementary therapies that can facilitate more normal movement patterns. . The most practical lesson to be gleaned from this book is how important structured touch input is to the child's mouth and body and how easily it can be incorporated into home and classroom routines. This input helps to calm, organize, and increase awareness, thereby improving the child's ability to use and initiate movements for overall comfort and lifelong well-being. . Excerpt taken from pages 1 - 5 Introduction . Evaluation of oral-motor skills has often been overlooked in treatment programs for children with autism spectrum disorders (ASD), partly due to a general lack of considering the development of the whole child. Thus, programs have often encouraged verbal imitation without focusing on the child's ability to process the sensory information and then produce the components of movements needed to produce a sound or a syllable. In the case of Suzie, this child is hypersensitive to tactile input inside the mouth. Suzie does not want to move the tongue vertically to the top of the mouth to produce a /d/ or an /n/ sound because it does not feel good to make contact with the palate or roof of the mouth. In fact, as we saw in the vignette, she may even gag when her tongue makes contact there. Oral-motor development is part of normal development and must be considered when looking at the child and her treatment program. They are the components that form the foundation of the sensory motor pat-terns that are practiced during the development of the simple as well as complex skills used while eating and speaking. Children with ASD, to varying degrees, are unable to register and modulate sensory information in one or more of the sensory systems (Ayers, 1979; Henry & Myles, 2007; Yack, Aquilla, & Sutton, 2002). This interferes with the ability to initiate movements, to plan movements, to sequence movements, and to develop a feedback system. All of these inhibit the development of oral-motor skills, in turn affecting eating, speech production, and communication. . Brief Overview of Sensory Processing and Oral-Motor Skills . The first child would have a sense of where his body is in space, accept being approached by others, and possibly gain information by reading. But he would be unable to follow verbal directions, need frequent repetition of verbal language, and possibly be using scripted language to communicate. The second child would easily become overstimulated by information, causing him to over-react or under-react and become defensive. This child would present with a more severe level of dysfunction, given his oral-motor, eating, and speech production. . Children with Differing Needs . Registering Sensory Information . Children with ASD often do not pay attention to information that is important, such as speech sounds. For example, instead of attending to speech, the child may attend to a background noise, such as the humming of a fan, not noticed by others around her. According to Ayers (1979), in such cases, the part of the brain that "decides" which information to attend to and what to do about that information is not "registering well." . Emily, a 5-year-old girl with a diagnosis of ASD, had difficulty registering touch sensations. She never felt drool on her chin or food on her face. Emily also stuffed food in her mouth with no awareness that her mouth was already full. Emily's mother wondered why she had to constantly tell her daughter to wipe her face or take small bites and swallow. This is commonly seen in children with ASD, but in varying degrees. In-deed, the ability to take in and respond to information is inconsistent with-in and across individuals. Motivation, strong sensations, and firm input are needed in order for these children to respond optimally to sensory input. . Modulating Sensory Input . The brains of many children with ASD are unable to control sensory input, causing them to receive too much input or not enough. In other words, the child is unable to balance the sensory input (Henry & Myles, 2007). In the first situation, the child is bombarded by input from one or more sensory systems. In the second, the child is not getting enough stimulation and, therefore, may crave input from one or more sensory systems. . Another example involving the tactile system (touch) is the child who needs strong, firm touch in order to register input but then quickly becomes overloaded and reacts defensively. This child is unable to regulate and integrate this input into his body awareness and make sense of the input once it is registered. This can result in oral-motor planning problems. An example is the child who has difficulty moving her mouth when requested to do so. She cannot stick out her tongue when asked or when given a visual model. However, the child can be seen to stick out her tongue while automatically licking a lollipop. It is difficult to plan movements when you do not have a good sense of your body. Further, when the child cannot organize and plan simple movements, he has trouble developing more complex behaviors such as speech production. In brief, the ability to plan movements depends, in part, on the accuracy . . Behavior Analysis in Practice - in practice I agree, in reality can be a different story, as we are all individuals and many of these practices I feel are not flexible enough "turn up for a certain day for a 1 hour session, life does not work like that and then be told how we should act to fit into a mainly NT society, maybe I would prefer the NT society in general to allow for my differences and embrace me for who I am.. I have tried being what I am not, acting the part for years,wearing the mask - does not work, I am still inside. Would you ask a black person to change there skin colors, not so long ago the majority thought they could, sadly some people even tried to bleach there skin, the point of saying this is if we do not stand up for who we are, who will. . Saying that I do feel ABA is helpful for everyone, not just people on the autism spectrum, as it makes us think about our own actions, what we do and how that impacts on others and ourselves... but feel there should always be a choice, unless the behavior if so out of control it becomes damaging to society in general. . I often feel because others can not see my differences, they are a lot less likely to understand or want to accept, many other differences are allow because seen. I feel the more we read up on behavior analysis and how it impacts on society in general all good, but we must all be allowed to be treated as the individuals we are.. so to me I think we should embrace our differences, not conformity to lose oneself. . "What is Behavior Analysis? Behavior analysis is the scientific study of behavior: Behavior analysts ask, Why does behavior change over time? They seek answers by looking at the biological and environmental factors, although they are primarily interested in the role of environment in behavior change. Many behavior analysts do either basic or applied research. Others specialize in applying behavior change principles to enhancing quality of life. To read further information about behavior analysis, click on low below: . Journals of the Association for Behavior Analysis http://www.abainternational.org/BAinPractice.asp . . Aspie parents - Can we be good parents someone ask me once ! YES of course everyone can be, as many of you know I am a mother with Aspergers and my older son is also on the autism spectrum, as far as bringing up children who gets it right all the time anyway. If the child's happy and doing ok what's to worry about, I can only speak for my son and my story but I know he is happier than most, doing extremely well and a wonderful individual.. so I must of done some think right... in fact being on the autism spectrum myself has helped our relationship, we have a deeper understanding and he is not frustrated and angry like many children that are not understood. . .
You can never know too much about Aspergers Syndrome. It is a life-long learning process If you or someone you love has the disorder. Knowledge is the key to understanding symptoms, causes, and treatment options . . Children are often the least heard, but most damaged - so it's no wonder they become angry, frustrated from time to time, which is often just a misunderstood difference. We are meant to act, conform and fit into a NT stereo type world, as often that makes us feel like ducks out of water, and all everyone does is complain and want to cure us for being differently able... no wonder some of us shout out now and again, but pointless as rather than listen far too often we get given another label! . ___________________________________ If you want to reprint and/or translated must make sure full copyright notice is retained and the content is not altered. Copyright © 2007 Alyson Bradley www.Asplanet.info - Aspergers Parallel Planet . . .
Overview of learning styles http://www.learning-styles-online.com/overview/ ZAC Browser - Zone for Autistic Children http://www.zacbrowser.com/ and To all those none autistic parents of autistic children who want to know! . . . Add your Comments – Tell us your stories… Please note all comments checked for spam before shown
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